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Privacy Statement – Voices Across America


The Lupus Foundation of America Inc. (LFA) is committed to protecting the privacy of its Web site visitors. The LFA does not sell, rent, or exchange personally identifiable information about its Web site visitors, except as noted below. You may request to have your name removed from lists maintained by the LFA. Please email us at info@lupus.org and provide your full name, mailing address, email address, and a sentence requesting deletion of your email address and/or postal information from our files.

Information We Collect and How We Use It

Statistical Data
 
We collect information about the domain name (.com, .net, .edu, .gov) of a visitor's internet service provider, and the computer and software that you use to access this website. We use this information only for measurement purposes. These measurements provide total Web site statistics, such as the number of visitors, how and when visitors arrived at our Web site, which pages were viewed most often, and the type and version of software used to view pages. This information helps us to effectively manage the site and to plan for future improvements. The data we collect only summarizes Web site statistics. We do not gather or maintain data on pages viewed by individual website visitors, except when you complete an online form as noted below.
 
Personally Identifiable Information
 
Individuals who use this Web site should be aware that some of the information you publish in your online profile will be published and visible to all visitors of this website. You should not include information that you do not wish to be made public or may identify you personally.
 
You can edit your profile by clicking on the link at the bottom of any page.  If you wish to have your profile removed from this Web site, send an email to voices@lupus.org with your name, address, email address, and any additional information that may be helpful to identify your profile and story in the database (such as your profile or screen name).
 
Email Addresses
 
We do not automatically collect email addresses or other personal information by visitors to this Web site unless you provide it on a form. The LFA uses email addresses provided to us through online forms to distribute acknowledgements, confirmations, receipts, updates, alerts, eNewsletters, announcements, breaking news, or other communications that are sent out by the LFA or an affiliate our a National Network of Chapters.   The LFA may on behalf of prequalified organizations or partners distribute information that we have determined may be of interest to our Web site visitors. However, your email address and other information are not shared with these outside partners. 
 
When you register, you may opt out to receive emails from the LFA or its affiliates and partners. You may unsubscribe from our email list at anytime or update your mailing lists preferences by using the appropriate link on email messages that you receive from us. You also may request removal from future messages by sending an email to info@lupus.org and request that your email address be deleted from our mailing list.
 
Share Your Profile
 
When you use the “Share Your Profile,” your email address is used to let the recipient know who sent the link to the article. The recipient's email address is not used for any other purpose.
 
Donations
 
When you make an online donation, we need to know your name, email address, mailing address, credit card number, and expiration date. This data allows us to process and acknowledge your donation. Secure server software encrypts all information you input before it is transmitted.
 
Processing your donation may require that your information be shared with third party contractors who provide services to us. However, these third party firms are contractually required to keep this information strictly confidential.
 
Mailing List Exchange
 
The LFA periodically will exchange its postal mailing list (not email addresses) with other organizations that we deem appropriate for specific, limited and one-time use. We share the names and mailing addresses of our donors with other reputable, qualified and prescreened organizations that share our values and performance standards.
 
We do not provide information about the amount donated or its purpose. You may request that we not sell, rent or exchange your name and mailing information by sending an email message to info@lupus.org that includes your full name, mailing address and a request that we not exchange your information with other organizations.
 
Postal Mailings
 
You may receive periodic mailings from the Lupus Foundation of America via the U.S. mail. If you do not wish to receive such mailings, please send your full name and mailing address, along with a request to be removed from our mail list, to info@lupus.org, or you can write to us at LFA, 2000 L Street, N.W., Suite 710, Washington, DC 20036 - USA.
 

Authorization to Gather Information

By using this Web site and other Web sites maintained by the LFA or one of its chapter affiliates, you consent to the collection and use of your information as described above. Any changes to this policy will be posted here.
 
Posted April 28, 2011

 


 

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