Diagnosed at 18

What do you want others to know about lupus?

Lupus can damage any organ in the body! It can keep you in bed with no warrning whatsoever for as long as it wants to. Lupus doesn't care if you need to get to work to pay bills and keep your insurance. Lupus can careless if you have a family to raise. If you let it, it can take everything!

Why is lupus a cruel mystery to you?

I've lived with Lupus for 20 years. I was diagnosed at the age of 18 (1991)with BOTH Systemic and Discoid Lupus. My life was just starting. Fever, nausia, my body hurting so bad all I could do was sleep and pray I didn't wake up. Getting a diagnoses with a disease I'd never heard of as I was just starting my life was devistating. Lupus robbed me of a college scholorship to play baseball as a pitcher. I've learned to handle my disease. I've learned to cope with an uncurable disease. I try to make the best of it. Some days are tougher than others but I am stronger than my Lupus and think I do well with the cards that have been delt.

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