What do you want others to know about lupus?

People always say you "Look ok", or you look "better today", you never feel that way on the inside, you always feel terrible.. its very hard to live with...

Why is lupus a cruel mystery to you?

I use to be able to work full time, and cook and bake thru the nite, now I have very little energy to get thru the day, but since I need to work for a living to support my family and benefits thats what I make sure I have to do, the rest suffers, any extra's, cleaning, my hobbies, pleasure, etc.. its so sad...

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