What do you want others to know about lupus?
Lupus is not a death sentence. It is not impossible to live a full life. At the same time, it is not the easiest thing to live with. Constant appointments, cocktails of pills everyday including medications for the conditions plus meds to treat side effects. Just to name a few challenges.With the right team (doctors, nurses, support system) anything is possible.
Why is lupus a cruel mystery to you?
I have lupus, lupus doesnt have me. Yes, there are some things that I can not do, there are some events that I have had to miss. But am I going to lay down and let it take over? No way. I was able to go away to college and enjoy the campus life. Inspite of 3 hospitalizations and 1 surgery, I was able to graduate from college in 4 years and with honors. Lupus is not a death sentence. I am still able to live my life, I just have to plan things a little bit differently than others.
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