What do you want others to know about lupus?
Continuous, unconditional support from family & friends is critical to the well being of every Lupus fighter. This is a chronic, long term war we are battling, and need help without having to ask for it. Dont ask, just do it! Drop off meals, go grocery shopping, babysit the children, help clean the house, take them to get their hair done. CALL, visit. We're human
Why is lupus a cruel mystery to you?
The family that I loved all my life has abandoned me. The stress of my illness has taken a great toll on my husband & son. People either support you completely or not at all. I can no longer cook meals for my family, go downstairs for laundry, can't keep a journal or write a letter, travel. Any plans, even Dr appts, are hard to keep. I have severe arthritis, heart disease, strokes, kidney, liver involvement. Every day I wake up, I'm grateful to be alive regardless if I'm in bed for the day or not.
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