Diagnosed at 43

What do you want others to know about lupus?

Lupus is Pain, it is devastating. It affects each person differently. Please understand when we say some days I/We cannot do a certain thing. Please do research,and please support your loved ones on good days as well as bad days.

Why is lupus a cruel mystery to you?

Lupus turned my life upside down. I was very active. I had bouts with Pleurisy, fluid drained off my lungs and then my lungs collapsed. I have had it attacked the lining of my heart, nephritis, leukopenia, severe anemia, panniculitis,severe pain etc...Lots of sleepless nights spent crying from the pain. I cannot work as long as I used to....if I do not get adequate rest, I go into a flare. The prednisone has become my best friend. I refuse to give in to this disease!

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