Dlayne
Diagnosed at 43

What do you want others to know about lupus?

Lupus is Pain, it is devastating. It affects each person differently. Please understand when we say some days I/We cannot do a certain thing. Please do research,and please support your loved ones on good days as well as bad days.

Why is lupus a cruel mystery to you?

Lupus turned my life upside down. I was very active. I had bouts with Pleurisy, fluid drained off my lungs and then my lungs collapsed. I have had it attacked the lining of my heart, nephritis, leukopenia, severe anemia, panniculitis,severe pain etc...Lots of sleepless nights spent crying from the pain. I cannot work as long as I used to....if I do not get adequate rest, I go into a flare. The prednisone has become my best friend. I refuse to give in to this disease!

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