Carolyn
Diagnosed at 44

What do you want others to know about lupus?

I would like everyone to know that Lupus is not contagious. It is life changing and can be life threatening. It affects everyone differently.

Why is lupus a cruel mystery to you?

It has made me slow down. Which is a very tough thing to do. It has brought many new wonderful people into my life. At this time I have what they call mild lupus, it's not attacking my major organs. I feel very lucky as so many people have it worse off than me. I have bad days and worse days and better days. It is hard to adjust to a life with with pain, even on your better days. You slow down, take breaks, take a few naps and keep on going. I have a lot of love, understanding and support from my wonderful family and friends. Life with lupus is tough but it is also a life, although changed and managed differently it's my new normal.

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