What do you want others to know about lupus?

you can't pinpoint one thing in general. you hurt, you're tired, you have to stay out of the sunlight as much as possible and still wear spf 5000 sunscreen, you forget everything and if you have not forgetten it yet just wait a minute. one person does not suffer from this alone. their whole family and friends suffer as well.

Why is lupus a cruel mystery to you?

i can rest assured that if there is a nuclear war we will probably survive. nothing can get through all of that sun screen! my children have to miss out on a lot because mom is either too tired or forgetful and schedules something else at the same time. i have to take so much medication that i don't think i would ever have to eat a real meal again because i get full on those. the good thing is i'm pretty sure i could graduate medical school in record time! i have a great medical staff (probably better and more than the president himself)! but most of all i have the love of a great family and great, great friends!!!

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