What do you want others to know about lupus?
This is the hardest thing I have ever done cause I hurt so bad all the time. I went 3 years without being diagnosed. It was so hard for me to get insurance, and my medical bills skyrocketed, and I still can't afford to pay for them. If you think something is wrong then tell your doctor, don't wait like I did.
Why is lupus a cruel mystery to you?
SLE has affected my life in so many ways. I also got diagnosed with Fibromalagia. I can hardly walk anymore, I can't run, I just wanna stay in bed all the time. I hurt no matter what I do. The one thing I wanna say is make sure you have a good support system at home. My family is the greatest, they are behind me 100% at what I decide to do. I am tryin to work, but its gettin harder and harder.
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