What do you want others to know about lupus?
Lupus is a scary disease and difficult to live with. The joint pain, stiffness and damage the sun can do makes normal everyday things most people take for granted extremely hard for a person with Lupus to do.
Why is lupus a cruel mystery to you?
I'm 18 years old. At the point in my life where i'm supposed to be partying and doing as much as I can. I can't do much. I'm tired all the time. sometimes I wake up and in less than two hours i'm in need of a nap. I have to limit my time outside due to the damage the sun can do to me, which means i've given up my ability to go out and have fun with my friends at amusement parks. I've realized that this new life takes some getting used to.
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