What do you want others to know about lupus?

I may look fine on the outside, but on the inside is a different story.

Why is lupus a cruel mystery to you?

I may not look sick, but on the inside I am dying (at least thats how I feels most days). When I tell someone that I have Lupus, most of the time their reply is "I dont even know what that is". So all I tell them is that I am allergic to myself. Lupus affects my everyday life in so many ways. Most days I am too tired to play with my son or even clean. I feel so alone in the whole situation. But I keep on trucking for my son. I had to quit my job because I was too sick to work. I dont talk to the people I am close to about it even though I know I should.

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