Heidi
Diagnosed at 50

What do you want others to know about lupus?

I was diagnosed only recently but I've been living with the symptoms for years. Auto-immune diseases run heavily on both sides of my family. If a friend or family member is willing to share medical information with you, listen patiently and be kind. Remember the last time you were sick with the flu or virus? That is what most Lupus patients experience everyday.

Why is lupus a cruel mystery to you?

The two biggest changes for be have been learning to live with the continued fatigue and what we call "brain fog". I was once an extremely active individual, out going and quick witted. I'm easily worn out now from very little exertion, struggle to finish sentences, and ache all over. Lupus, however, does not define who I am as person.

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