What do you want others to know about lupus?

That it is an autoimmune disease that science itself knows very little about compared to other diseases. the reasons of why people have lupus are still not known. Lupus has many faces, in the sense that it can imitate other diseases. the sooner you can detect lupus the better your outcome will be.

Why is lupus a cruel mystery to you?

My wife has lupus. she was diagnosed with lupus as we were engaged. it was really hard for us in the beginning. we later got married and it was still hard. but i can say now that things are getting better each day. it is really hard to see your wife on a hospital bed and it is something that you never want to happen again. so you really become more conscious about any of the beginning symptoms of an outbreak. over time you begin to acknowledge that some symptoms are nothing to worry about. that they are things that can happen to anyone. if there is piece of advice that I can give anyone, it would be to be patient. that your circumstances will get better with time.

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