Kathy S.
Diagnosed at 43

What do you want others to know about lupus?

I want people to know that underneath the rosy faced , smiling woman are many tears. Also that if I say I can not do something today, please don't ask me over and over why,or what hurts, trust me I am probably more upset than you. If I am trying to over compensate and do too much on a good day, feel free to help me slow down, sometimes I am my own worst enemy.

Why is lupus a cruel mystery to you?

I have always been a Type A personality, slowing down to me was a sin. I feel sad some days because I wake up with the same mental state that I have had all my life, but my body isn't feeling that same drive as the mind.I feel that sometimes I am not the mother or wife I want to be.It has affected my lungs, my heart and my skin (as of now). So every breath seems more precious and my old friend the sun isn't so much fun anymore.I try to be positive and to look at the many blessings in my life and pray that some day they may find a cure to let me feel like me again.

Support this Voice