Maya7778
Diagnosed at 25

What do you want others to know about lupus?

I want people to know what Lupus can do. I want people to understand even if we look good, we don't feel good. This is a hard disease to live with. We have so much to worry about. I may not look sick on the outside, but my insides are sick.

Why is lupus a cruel mystery to you?

I used to play in the sun, I used to just close my eyes and felt the sun on my face, that was one feeling I love feeling..the warmth. I can no longer run or walk more than a few feet. I had dialysis for a little over two years until my brother gave me a kidney, I have liver disease, and a clotting disorder, I have lost two babies, broken ankle, heart attack, stroke, and I have been diagnosed with NSF which is making it very difficult to walk. I can not play outside with my only child, I hate being and feeling like this.

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