Betty
Diagnosed at 41

What do you want others to know about lupus?

Lupus is not contagious and it's invisible. If you don't know about it, ask us. Don't pass a quick judgement, when you have no idea how Lupus affects us. Lupus takes away a lot from us but we need to remain strong and fight it. We need everyone's support.

Why is lupus a cruel mystery to you?

Lupus has changed my life. As an active person, I had to take a step back and rethink my activities. There are days that I can't move because of extreme fatigue. When I feel better, I forget about it and do too much so I had to learn to slow down. As a parent, it's difficult at times and other parents don't understand. I feel bad for my child, however; he's my strength. I take it a day at time and I thank God for all the people I have met through this illness.

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