What do you want others to know about lupus?
That it's not a choice, so make the most out of your life. With Lupus people don't understand it one thing I see with lupus is how diffrent it is every day. Remeber lots of people look and act healthy till they walk,or get up from a chair go down stairs can't eat etc. My daughter is so positive, I've learned so much from her, still learning.
Why is lupus a cruel mystery to you?
It's so hard to explain because yes it has affected me but how it has affected my daughter is the hardest thing to watch. We want to help but sometimes it drives them nuts, they want to be normal again and even though they know they can't they don't want pity or someone asking are they ok all the time. I have had to back off so I give her the space she needs to deal with it and that is hard cause I want to be there for her all the time, but I have to let her do this her way. I have so much love for her and respect and am so proud of her and when I'm down she is so positive and helps me even when it takes her (spoons). I have also seen how much she means to others which warms my heart. Thank you Rusty, love you. We will go through this together and be stronger for it cause of her. Keep fighting.
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