Stefanie
Diagnosed at 21

What do you want others to know about lupus?

Lupus is apart of life everyday for those that have Lupus. Each day there is something that we are dealing with. It could be physical pain in our joints, emotional stress from living with it, worry about the complications we are facing. Just because we may look healthy and normal please understand that we may not be feeling well.

Why is lupus a cruel mystery to you?

It has impacted my life in everyway possible. After being diagnosed, I felt pretty good, the Lupus was calm and not a big issue. In 2008, it all changed. I got married, and three months later I was diagnosed with Diffuse nephritis, and had open heart surgery to replace my mitral valve. I had chemotherapy and has severe depression. It was a rough year. I didn't know if I would be able to have the life that I had dreamed about. With many prayers, a year later I was pregnant with my daughter and my Lupus was in remission. It was a true miracle! Becoming a mother was my greatest desire. Later I had my son, but with that pregnancy it sent my lupus into a flare again. I now have nephritis again, and I am being treated for that now. I try to be the best mom I can be with Lupus, but I am not who I thought I would be as mother. I imagined being so active and that just isn't the case. I sleep a lot and my husband has to help with the kids a lot. I wouldn't trade being a mother for anything though. It is my motivation to keep going when I don't feel well. Lupus has impacted me, but I hope that besides the physical aspect of it, it has affected me for the better. I am a stronger person, I have true empathy for others with chronic diseases. I have a strong desire to help others overcome their struggles.

Support this Voice