Booskie08
Diagnosed at 24

What do you want others to know about lupus?

Lupus can turn your life around in a complete 180. I had so many plans and things that I wanted to do but when I was hit with the diagnosis and treatment plan I was stopped right in my tracks. It affects the whole family because the one with lupus needs so much support and understanding from their loved ones.

Why is lupus a cruel mystery to you?

When I was 14, around 2002, I had my first seizure and I would have a total of 5 over the next several years. When I was 18, the fall of 2005, I started college at a small university in South Carolina and noticed that I would became short of breath walking very short distances; like 5 minutes or so. My feet were swelling on a daily basis and one morning I woke with this nagging pain in my shoulder, right at the bottom back of my neck that would last for a week. By the end of the week I decided to go to the campus nurse who sent me to the nearest Urgent Care Center. The doctor there did X-rays and made me do a blow test and explained to me that my airways were constricted or swollen and prescribed me Albuterol. The second misdiagnosis came several months later when the rescue inhaler seemed to do nothing to help my most prevalent symptom of shortness of breath and now I had an associated cough-a dry, hacking cough. This time I went to a local Family Practice and the doctor did no X-rays or test only listened my story of how I get short of breath walking short distances and from that he concluded that I had exercise-induced asthma. He also gave me a prescription for Albuterol and Pulmicort. I tried his theory and antidote for 40 days and it to proved to no avail. Besides how could it be exercise-induced asthma wh...

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