janet
Supporter

What do you want others to know about lupus?

when your body aches all over,you develope nasty rashes,tired all the time get to a doctor..Unfortunately I have had this disease for a very long time and no doctor ever picked up on the symtoms. Drugs thats a joke because all of them i am allergic to. Now I am trying infusions of bylinsta.Some days you feel ok and well as for others you can barely get through.

Why is lupus a cruel mystery to you?

I had to quit my job.I could no longer get through the day without having to sit down.

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