vicky
Diagnosed at 42

What do you want others to know about lupus?

I want to let people know that living with lupus is not easy. You have to deal with pain, hair lost, spots in your face, rashes all the times. You feel tired most of the times, it is not easy to fall to sleep and a lots of symptoms .

Why is lupus a cruel mystery to you?

Lupus impacted my life really hard. I lost my hair years ago. I had change hospital I do not know how many times looking for somebody to help me with my hair lost. My face looks really bad with a lot of spots I buy creams almost every week to see if I can fine something that help me. The only way I feel safe is in my house because I do not want people to see me without hair and my face looking like a monster, Im sorry this is the way I feel about myself. I do not remember when was the last time that I took a picture. I hate it now.

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