Sandra
Diagnosed at 28

What do you want others to know about lupus?

Lupus is a difficult condition, that at times people don't understand. At the end of it all, it's up to you as the patient to fight the illness and not to give in. Family and friends mean well but it's only you that feel the pain. A condition with no cure and at times you may feel hopeless. But remember you are not alone. Fight back and take back your LIFE...

Why is lupus a cruel mystery to you?

Lupus has not been easy. I am divorced and a mother of two young men. Ive been raising my boys for the past 14 years by myself. Having or maintaining a relationship has not been easy. I get flares or sick and sometimes the person am with really doesn't understand the condition. I am a fighter. I drive myself to and back from the hospital. It is hard at times to plan a trip or even a date because a flare may creep up. Lupus has been such a fight with me. At times i just want to give up and just stay in bed. But i look at my boys and i say, hell no, i am a fighter, i wont give in. I will be stronger and live my life to the fullest. Everyday i wake up with a prayer because my bones hurt and i wake up tired. But i get dress and i do my hair my makeup and start my day. I am true believer that we all make a difference in this world. Sometimes i share my experience with other so they can see and treasure what they have.. Health is a beautiful gift and many people take it for granted. As a woman, i have struggled and suffered with this condition but here i am writing about it and feeling good. We are not alone. We must fight and not give up. We have a purpose in life. Just hold on and be strong....

Support this Voice