What do you want others to know about lupus?
This is a very horrible disease to live with. I was diagnosed at age 31 after suffering 2 heart attacks with no explanation. I later suffered 2 more heart attacks and the last, while pregnant. At age 37 I was diagnosed with nephritis and again almost died. I have several secondaries that add to my daily Lupus fight. All they can do is treat me symptatically.
Why is lupus a cruel mystery to you?
There is NO CURE! I am only treated as each new secondary pops up. Light sensitivity ,dermatitis , sjogrens,fibromyalgia , anemia,nephritis. hair loss, anxiety,depression just to name a few. Everyone around me has been impacted. I've lost friends for various reasons related to Lupus. I can't do what many people can daily and often people take those simple things for granted. I'm afraid and so are my children. I have a good support system but knowing there is no cure leaves us with almost no hope.
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