Vanessa
Supporter

What do you want others to know about lupus?

I have been living with Lupus for past 10years It has been a very hard road. I have lost my leg,had three heart surgeries and hip replacement and both shoulders replaced due to medication eating up my bones. I have gotten to the point where I am able to function, taking 10 to 15 pills a day. Each day I take pain killers. I have new medication call cellcept good

Why is lupus a cruel mystery to you?

I have no engry. I have had 13 surgeries since I was diagnosied. This is an illness that if you do not have it you do not understand the pain a person can indure. And why you stay so depressed. Because there is not real help for Lupus patients. Lets stand together and have them do more research for Lupus.

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