Diagnosed at 29

What do you want others to know about lupus?

How life changing this illness is. I want them to know that just because you have lupus you don't have to let yourself be defined or defeated by it. I want them to know I have lupus and I'm here to stand and fight with them!

Why is lupus a cruel mystery to you?

I just got diagnosed this year 1/24/13 I'm 29 years old. I had been suffering from many symptoms for the past 4 1/2 years now going to multiple doctors, to which most of them didn't listen. Finally a doctor heard my voice and sent me into to a rheumatologist, before seeing my rheumatologist I had undergone painful test that soon would say they were for nothing, one visit into the rheumatology office and I was diagnosed! I had a mix of emotions but still tears were streaming down my face, finally I had answers to why at 29 I couldn't grasp on to things without dropping them, get through a day without extreme exhaustion, why my eyes were blurred at times, why sometimes I got confused, why my body trembles at times, why at 29 I was losing my hair, why I had this unexplainable rash, why my feet and hands turn purple and blue, why my body always feels like I have the flu. This illness has taken a lot out of me, and even though the questions of why I'm faced with this still remains, I refuse to let this define me!


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