Sarahneal
Diagnosed at 20

What do you want others to know about lupus?

IT TOOKS SEVERAL YEARS TO FINALLY KNOW I HAD LUPUS. THE PAIN AND THE FATIQUE WERE AWFUL. I HAD TOO CHILDREN BOY 8 DAUGHTER 11. BOTH WEE VERY ACTIVE IN SPORTS. I T WAS SO HARD TO GO AND FIND A SHADE TO WATCH THEM PLAY. LUPUS CAN CAUSE THE RRASH IN THE SUN, THE PAINFUL JOINTS, THE FEELING U JUSST WANT TO STAY IN BED.

Why is lupus a cruel mystery to you?

WHEN I WAS DIAGNOSED FINALLY IT WAS ALMOST A FEELING OF RELIFE TO KNOW I WASNIT CRAZY. WHY DO I WAKE UP SOME MORNINGS AND FEEL LIKE I CAN'T GET OUT OF THAT BED. I SAY OK GOD DO I DO TODAY. YOU NEVER KNOW WHAT IS GOING TO HURT OR UNCOMFORTABLE. TRYING TO EXPLAIN TO PEOPLE THAT SAY U LOOK SO GOOD =U DONT LOOOK SICK. SO MANY UNANSWERED QUESTIONS.

nealmj@charter.net

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