What do you want others to know about lupus?

Although we look good on the outside, we feel horrible inside! Some days it is a struggle to even get out of bed. There are days when I can barely move because my joints are so inflammed and I feel no one understands. If you haven't walked in my shoes,please don't judge me. The worst thing people say...."she looks fine". Listen to us if you care and show us.

Why is lupus a cruel mystery to you?

You never know what part of your body will be under siege next! Will I get pleurisy? Will a clot go to my lung, will I know? Will my kidneys be attacked? How much hair will I loose? Will I have eyelashes or eyebrows? What kind of day will I have? It's the unknown that makes it cruel. The other illnesses that seem to piggyback with Lupus make it cruel, most of us don't have JUST lupus. We are also battling several other illnesses. One day at a time, that's all I can do! You can educate yourself or support your lupie.

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