Diagnosed at 42

What do you want others to know about lupus?

LUPUS CAN BE FATAL!! There is NO CURE! Don't make light of this horrible disease! I want others to educate themselves on the disease by reading literature or going on the computer and doing the research on this cruel cruel disease! Write to congress and tell them to donate more money to research!!

Why is lupus a cruel mystery to you?

Diagnosed 3 years ago with Lupus, MCTD, Fibromyalgia and Raynauds Disease, with underlying scleroderma (most of my friends and family don't even know I have been diagnosed with multiple diseases, I figured why tell them when they can't even understand Lupus!)Lupus is a debilitating and extremely painful disease. Family, friends, coworkers may see me as a person who looks fine on the outside but inside is screaming and in agony. Everyday it gets harder to get up and do the day to day functions that everyone takes for granted, like getting out of bed not feeling like you are going to die from the pain and the swelling in your joints. Taking a shower and getting dressed daily takes so much effort. Taking a walk, driving in a car, all those simple things to others but sometimes torture to me and others living with this disease. Lupus is a Cruel Mystery because you never know what is going to happen next and you are constantly living on the edge.

Support this Voice