Tami
Diagnosed at 39

What do you want others to know about lupus?

Lupus changes your world. I have to keep up appearances even though I'm exhausted and in so much pain just trying to get through the day because I don't look sick. People don't understand.

Why is lupus a cruel mystery to you?

I've had recurrent respiratory illness for the last year that had been diagnosed as this or that or the other. I've been hospitalized eight times in the last year for that and chest pains that couldn't be nailed down. Finally one doctor who was new to my case determined it was Lupus effecting my lungs. Since then I've developed back and leg issues that are some type of autonomic neuropathy related to lupus. It's cruel mystery to me in how it keeps on and keeps on attacking me.

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