What do you want others to know about lupus?

I want others to know that even with lupus, there is hope - hope in Christ. There is so much beauty in this world, and it is by and through my lupus that I have been able to uncover it. Lupus may be a lifetime disease, a disease that those closest to me don't understand, but it doesn't have to be a lifetime curse. It can be a blessing in disguise.

Why is lupus a cruel mystery to you?

Lupus is a cruel mystery because it is so unpredictable - one day I'm able to go for a walk outdoors on a nice day and be almost normal, and another day I cannot even lift up a bowl for cereal because my muscles and joints are so weak and are in so much pain. Lupus is debilitating in all aspects. On good days, I have to watch that I don't overdo it to anger the disease and end up getting sick later. On bad days, I can barely maneuver around my house, let alone go anywhere in public. Lupus is cruel because there is no solution, just more and more combinations of drugs to try to treat the disease, the inflammation, and the pain. Lupus is cruel because it cause not only suffering of the body, but immense suffering of the heart, the soul, and the mind.

Support this Voice