Jamie
Diagnosed at 22

What do you want others to know about lupus?

I want others to know how unexpectedly and severely ill people with Lupus can become without much warning. I want people with Lupus to know that having health insurance can SAVE them from ALOT of hard times.

Why is lupus a cruel mystery to you?

Lupus is indeed a CRUEL mystery because there is no cure yet. (that I am aware of.) The Lupus community is one made up of patients and doctors, people who support Lupus (Researchers and Advocates), as well as friends and family members of those suffering from Lupus...many of them patients, friends and family members of those diagnosed with Lupus. Although the LFA is making and has made HUGE amounts of effort to educate the public about Lupus, raise awareness and get funding for Lupus research, the disease still remains a mystery to people who have not experienced some of the most devastating effects of the incurable, autoimmune disease. Since Lupus seems to "flare" or "strike" a patient without much warning and is difficult for doctors to diagnose, I think it will remain a CRUEL MYSTERY until a cure is found.

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