Sue
Diagnosed at 53

What do you want others to know about lupus?

Lupus is a day to day REAL battle. Lupus can attack a body in so many ways; different parts of your body and at different and most likely inopportune times. A lupus flare can be a day of feeling achy and exhausted to two or more weeks of being "knocked on your back". And then days of feeling great. Understanding, even for people with lupus, is often difficult.

Why is lupus a cruel mystery to you?

My diagnosis was only two and one half years ago, but looking back, most likely lupus was beginning to develop years before. One of the hardest things has been accepting how lupus can and does affect my body and life. Learning to know what I can or cannot do and when and how much has been difficult. Learning to ignore my perceptive of what others think has become a priority. If friends and family want to understand, they can learn. If not, I can't allow this stress to overtake me. I have a supportive husband, who constantly reminds me that I don't need to be "superhuman" and for this I am thankful. Still regretful that I cannot accomplish some of the things that I would like, but ever so thankful for the "good days".

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