What do you want others to know about lupus?

It is debilitating at times... It requires 24/7 commitment from the patient, and their supporters.

Why is lupus a cruel mystery to you?

My daughter at 16 was diagnosed. It was my job, as Mom, to teach her living boundaries, in lieu of what she was living without. Big difference, but a better way to look at the way of life positively.

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