What do you want others to know about lupus?
Lupus is such a serious illness. I almost lost my life several times from the time I was diagnosed. I was 42 years old when I found out I had Lupus. However I think I had Lupus long before I was properly diagnosed. I was in kidney failure. I had lost so much weight and no one knew what was wrong with me.
Why is lupus a cruel mystery to you?
Well I no longer work. As a result of SLE Lupus I have sudo tumors of the brain. I started having seizures. I lost my vision a few times. My joints are all messed up. Most days I can hardly walk or bend my fingers. I have kidney issues with my lupus. I never thought I would take so much medication. I am always tired. I live in pain. I have two minor children and my prayed is GOD give me a long life. I want to live to see my children grow up and start their lives. I often wish I could have my old life back!
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