What do you want others to know about lupus?

As a parent of a daughter with Lupus, I want other to know how much precious time this disease steals away from us. Flare after Flare, tests and more tests, procedure after procedure, Chemo, pain, tears, and some relief. I want to live my life holding her in my arms, promising her it'll be alright. Neither of which I can do, it would be a lie.

Why is lupus a cruel mystery to you?

Muscle, joints, lungs, kidneys, blood count, migraines, weight loss, rashes, craving the outdoors, IVs, blood work, anxiety, memory, craving her life back.

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