What do you want others to know about lupus?

It took 2 years for me to get diagnosed. In that two years I was still working and suffering with pain and severe fatigue. I finally went on STD which has helped me so much. Although I still have flares I had to admit that I could no longer do my job, that I loved. I feel like it's so hard to explain this to people who are not aware of the symptoms of Lupus.

Why is lupus a cruel mystery to you?

Having Lupus has affected my entire life, especially my husband and daughter. Our family dynamics has changed where I was the one who took care of everything, now I have to let them help me with practically everything. I have to plan almost everything. Just going for a walk on a nice day means that I probably won't be able to do anything else that day. Since I am no longer able to do my job. I have to consider changing careers after 22 years. I'm just now getting used to telling people the truth when I don't feel good. I think I will print the May facts about Lupus and give it to people that I tell I have Lupus so that they aware.

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