What do you want others to know about lupus?
How it affects the lives of everyonearound the person that is sick. Also, how it affects the person with the disease. So many people don't understand it. I know personally that alot of people think that I am not sick because you don't look sick or always act sick but it has nothing to do with that at all.
Why is lupus a cruel mystery to you?
It has changed my life alot. I don't do as much phyiscal activity as I used to. i can't be in the sun as much as I used to without it bothering me. It makes doing some things with my daughter alot harder. I am a single mother and I get very tired and don't really have alot of people to ask for help so it's made that difficult at times.
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