Desiree
Diagnosed at 26

What do you want others to know about lupus?

Its a life changing disease. Has caused my family many scary nights and days. Finally a new medicine has emerged for us after 50 years.

Why is lupus a cruel mystery to you?

All problems started when I was 14. In and out of Childrens hospital with ITP. Which caused my spleen to be removed. Now years later with the Lupus diagnosis, Its harder for me to fight off infections that would be easy to overcome, makes me sick to the point of hospitalization. My husband and children have had to see me weak and ill many times. I can't play in the sun with my kids the way most people would take for granted. Even working outside the home has posed threats to my system. Lupus has tried to take me on 3 sepsis occasions. But I am an awnry fighter. And that which doesn't kill me, only makes me stronger. My family has come closer with this. We look at each day as a gift that could be my last.

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