What do you want others to know about lupus?
I want others to know that lupus does not mean the end of a life! Some of us are on dialysis and some have full time jobs. We all live very different lives with this disease, but still very normal lives as well.
Why is lupus a cruel mystery to you?
I have been on dialysis since 2012. My kidneys failed because of lupus. I need a transplant but I have to lose weight in order to get on the list. Right now I have lost 10 pounds, but I still have a long way to go. I also want to mention that my mom is 57 years old and she is my caregiver! We do home dialysis a she has a lot on her plate now, especially with a full time job then having to take care of herself. When I was first diagnosed I would have never have thought lupus would consume some much of my life!
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