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Arizona

Lupus Foundation of America, Inc.
(888) 385-8787

Mel
Diagnosed at 10
There is no giving up. Sometimes there's giving in; to the pain, the fear, the fear of more pain, the loss of parts of us that can't come back,& that's okay. Giv...
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NP in AZ
Diagnosed at 35
Lupus does not have to be a death sentence. I was diagnosed with Lupus when I was 35. I have been controlled with plaquenil and 5 mg of Prednisone. I have been ab...
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bcppyafqs
Diagnosed at yuh
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SJ
Diagnosed at 46
It is an "adventure" to live in my body (but without the exhilaration). I won't look like I am living with the magnitude of pain, discomfort, and symptoms that I do...
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RACHEL
Supporter
I WAS FIRED FROM MY JOB OF 15 YEARS BECAUSE AFTER FIVE YEARS OF LIVING WITH LUPUS, I HAD TO TAKE TIME TO DEAL WITH THE NEW PAIN, HAIR FALLING OUT, WAITING FOR AN OK...
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Carmen
Supporter
Stay Away From The Sun,Have A Life With Out Stress,Do Laugh,Forgive,Love,Be In Peace,Love Your Family To The Fullness,And Give Thanks To God For Every Day Of Your L...
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Charity O
Diagnosed at 39
Don't be scared of being labeled with Lupus. Knowing as much about the disease helps make everything less scary. This is a disease with a wide variety of symptoms a...
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corky gree
Diagnosed at 50
just because you can't see our pain, doesn't mean our pain doesnt hurt any less
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Shannon
Diagnosed at 24
The best way you can help someone with lupus is to read about it. Everyone who has read about the disease means so much to me, because then you have some understan...
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Elisabeth
Diagnosed at 17
We may look healthy and that we aren't living with a disease, but we all are survivors.
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patticakes
Diagnosed at 47
That even though we look "healthy and normal" we are not.
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Laura Jone
Supporter
I was diagnosed with LUPUS in 2007. I didn’t know what was going on. All of the symptoms started happening back to back overnight LITERALLY. A few of the symptoms t...
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Mary Joyce
Diagnosed at 30
The most important advice I have is to listen to your body and stay on your medicine as directed. Just because you have "good days" doesn't mean you can skip your m...
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Az. Judy
Diagnosed at 52
Lupus can be under the radar for years before it is diagnosed, parents need to watch for unusual rashes or redness from the sun, stomach aches, muscle weakness & jo...
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Katy C
Diagnosed at 27
Lupus is a silent snake waiting to attack you inside without a moment's notice and it can bite hard sometimes with harsh damage. It can change your day to day livin...
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Mary Toney
Supporter
Lupus is a terrible disease but you can continue living and working with it. I have Discoid Lupus so it is easier to live with.
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Mbogietoo
Supporter
That it is a dangerously incapacitating disease that you cannot see. The patient did nothing to cause it and can do nothing to cure it. They can only cope with it ...
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Helen.Roy
Diagnosed at 28
Lupus is constantly changing the effect it has on my body. My Doctors are always trying to stay two steps ahead. Be it a preventative form of chemotherapy known as ...
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LA
Diagnosed at 35
Lupus is an adventure, challenging and impairs my ability to live a "normal life." Most of the damaging and disabling aspects and symptoms of lupus are invisible, b...
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Pitbulldad
Diagnosed at 55
Mibne gives me R.A. Factors, lots of pain in Hands, Wrist,Sholders. Now starting in Hip and Feet.Is there a special Diet I should be on ???
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Cyndee
Diagnosed at 19
Just because you have lupus doesn't mean that you can't have a happy and fulfilling life. Good communication between your doctors and you is essential in treating ...
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Shelley
Diagnosed at 24
I was first diagnosed at age 24 but I went into remission for a very long time, so I thought it was a misdiagnosis. Well in '09 I had been getting sick alot, having...
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KimmiD
Diagnosed at 27
I would like others to know that I feel horrible when I have to cancel plans at the last minute because I'm not feeling well. But I definitely prefer to always make...
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mayone
Supporter
Lupus is one of many autoimmune diseases - insurance companies will not sell policies to pts. who have these diseases - we need to do something to help us all get i...
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CeCe
Diagnosed at 55
I was diagnosed with sickle cell anemia at the age of 20 when I became pregnant with my first son. I knew my symptoms for that disease but after turning 50 years ol...
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debbie coates
Supporter
its very painful..it attacks your soul and ur family..
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Mags
Diagnosed at 45
Just because you may look fine on the outside doesn't mean you aren't hurting on the inside. Everyday is a new challenge and you never know what each day will bring...
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norma
Diagnosed at 21
that they are safe and can't get my autoimune disease from me. it's not like aids. i do hurt most of the time even though you can't see how bad it hurts it stikk do...
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Julie
Diagnosed at 21
I am living proof that you can live a rich and full life with this horrible disease. I know, for me, the key is in having perseverance and a positive attitude. Yo...
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Glendalega
Diagnosed at 51
Lupus is a deadly disease. It saps your energy and your life. Little by little you give your life away to Lupus. When I first was dx I met hundreds of people with ...
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Kimyatta C
Diagnosed at 40
Lupus is real. Most people wont take the time to know what Lupus is and how it affects a persons life. If you know someone who has Lupus, just because they don't ...
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Mnevin01
Diagnosed at 41
How does one bring to a new doctor that this disease can cause such intense pain that walking is absolutely impossible at times. How does one afford the medication.
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marcella g
Diagnosed at 30
i wouldnt wish lupus on anyone, its very hard to deal with. everyday is different and you plan your everyday around it. didnt understand this sickness till i have t...
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Ana
Diagnosed at 28
Lupus is a very difficult illness that gives a lot of pain. Very hard to control and everyone has different symptoms. Mine has been very difficult for 3 yrs in and ...
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Mecca M.
Diagnosed at 26
Lupus is an unpredictable and complex autoimmune disease that causes inflammation and can damage any organ in the body with life-threatening consequences. Though ea...
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Lynnette
Diagnosed at 35
Lupus is a very complex disease. It is slightly different with each person who has it. It also causes so many other secondary symptoms like sensitivity to the sun, ...
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Phoebe
Diagnosed at 22
Lupus is a chronic disease that will control your life if you don't listen to your doctors & take care of your health. Having lupus is not a death sentence.
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pbourne
Diagnosed at 23
Just becuz we all don't look sick doesn't mean we aren't...educate yourself about lupus before you judge.
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roberto
Diagnosed at 12
Lupus (SLE) can be tamed and put to rest. Become aware of stressfull situations and de-stress fast. Stay calm at all times, watch how you play in the sun. eat he...
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Liz K.
Supporter
I have had Systemic Lupus for 3 years now. It has been a very painful and difficult road. It has taken many different treatments to alleviate the inflammation and...
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Jess
Diagnosed at 22
Why is it that a disease that affects 1.5 million people which is roughly more than patients cerebral palsy, Multiple Sclerosis, Sickle-cell anemia, and cystic fibr...
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Antre
Diagnosed at 21
It's not easy living with Lupus but no one said life would be easy!
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DeVia
Supporter
LUPUS is NOT contagious, but being around you when you have something contagious can put me at risk.
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Kristi
Supporter
Don't be ashamed to tell others you live with Lupus. This is how the word is spread. We must educate others, be willing to share our life experiences. It's not symp...
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tavonna
Diagnosed at 21
Lupus is not a death sentence.
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Madalyn
Diagnosed at 30
Each time someone new learns that I have Lupus they seem to say, "but you look so good, you look so normal". I can't count the number of times I have heard that sam...
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TRacy
Supporter
Doctors misdiagnose lupus. Doctors treat symptoms instead of finding the real reason you feel the eay you do. People do not understand what lupus is all about. Ther...
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Stella
Diagnosed at 22
Lupus is close to impossible to live with at times. I have the butterfly rash all over my face and it upsets me when a stranger or even a friend, family member asks...
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Treesje7
Diagnosed at 48
It's frustrating and confusing during the process of diagnosis.
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Mariposa
Diagnosed at 41
The pain is constant but the important thing is not to focus on the pain. Focus on what's good in your life. Do things that make you happy. Surround yourself wit...
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Lisa
Diagnosed at 30
It is very important for people to know that there is NO one test for Lupus! Just because your ANA titer was positive does NOT necessarily mean you have Lupus. A ...
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monique
Diagnosed at 12
it's a monster and it totally needs to be taken out but you have to be strong than lupus. it's already tried to take me out seven different times but i keep fightin...
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lupus dad
Supporter
lupus is very new to our family and i would like to know about the diet a person should have with lupus and pool use.We live in arizona and is pool use during the d...
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tammy
Diagnosed at 37
lupus is a very painful disease i live in az and i have not heard of anybody famous being a spokesperson for lupus here in arizona,i know it affects alot of latino ...
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Lori
Diagnosed at 38
Lupus is not a life "choice". Lupus is a forced life. Docs think I have had lupus since I was 17 or so. It has changed everything about how I live, how much time ...
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KFitz
Diagnosed at 24
It is a sometimes very hard and a unmanageable disease to live with. Make sure that if you suspect you may have it do yourself a favor and have a DNA profile panel ...
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Mary
Diagnosed at 16
I want people to know that Lupus is real and it effects people in different ways. What really brings people together is that every person who has lupus knows that w...
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Candi
Diagnosed at 32
Having Lupus means that your body is attacking itself. Lupus can be mild or severe, it can go into remission, or it can flare up. Lupus can be treated... but there...
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Izzy
Diagnosed at 53
The quiet suffering of those with Lupus demonstrates the bravery of the human spirit. To think that there are millions who have Lupus and many more that remain und...
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Bridget
Diagnosed at 15
We seem fine on the outside most days, it is because of the handful of prescriptions we take twice a day.
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TDN
Diagnosed at 28
Lupus has taken my life away. It seems to keep getting worse. I just want to live out my days pain free. Is that too much to ask. I have had this most of my life an...
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Michelle
Diagnosed at 31
I want everyone to know that having Lupus doesn't mean your life stops. Yes it may change in many ways but you can not let lupus take your life over. I have been si...
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JZA
Diagnosed at 56
That a person can look "ok" and still be sick. That chronic pain and fatigue are real and terrible to live with. That Social Security disability is close to impos...
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CC
Diagnosed at 24
We need more people to know how bad Lupus is. It is not just a rash as some suppose. It can affect people of all ages. www.lupus.org is a the best resource for edu...
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Danica Moo
Diagnosed at 22
I would like others to know that even when we look healthy, there is a lot of suffering underneath the surface. It is scary and sometimes feels like a road only the...
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Jillian
Diagnosed at 25
Lupus changes your life, it takes away possibilities and makes every moment difficult. It also makes you strong and you learn to live for the good days. I may look ...
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faythdom
Diagnosed at 34
Most people do not understand the pain people with lupus go through. They think because this person looks healthy the must be healthy. With awareness we can chang...
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Gabbi Jue
Diagnosed at 14
Lupus can be very debilitating and difficult to deal with, but a lot of people don't realize or understand what we go through because sometimes we look perfectly fi...
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Celia Gonz
Diagnosed at 30
Even though you may be the only one in your family with lupus.... you are not alone. Surround your self with friends and family and as hard as it seems at times whe...
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Adilene
Diagnosed at 16
Lupus is an unexpected sickness that many still dont understand. The pain is unbearable and its something one has to fight..
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Marie
Diagnosed at 19
Lupus impacts EVERYTHING I do. From where I go and what I do to what I eat and wear. Every day can be very different, but I will always have the thought in the back...
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Nessa
Diagnosed at 9
There are more then 1.5 million Americans living with this disease today. Lupus is a disease in which a person's immune system attacks the body's own organs and tis...
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