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Lupus has many voices.  Add Your Voice »

California

LFA, California Regional Office
562-467-8994 / 800-558-0121

weishendo
Supporter
As you have found out by now. Lupus is an autoimmune disease. This means that the immune system mistakes the body's own tissues as foreign invaders and attacks them...
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pwlznzhxbu
Supporter
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jillbee
Diagnosed at 42
You have Good days and Bad days. What is important is to HONOR yourself no matter how good or bad you are feeling. Self Love, Self Care, Faith……Got have it!!
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LondonLady
Diagnosed at 33
Lupus is a silent terrorist that lives inside your body and decides when and where it will attack. The attack can last for months, or years at a time..and it can ki...
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jasmine
Diagnosed at 11
I want other people with lupus not to let their illnesses stop them from living their lives. Living with a chronic illness may be a huge setback as it is no picnic ...
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leona
Diagnosed at 49
lupus have attacked my skin, and trying to attack my kidneys, i'm now seeing a rena and hemo doctor and take a lot of lab test, I get depressed and I am tired all ...
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Sue
Diagnosed at 75
can be sneaky, creep up and surprise you.
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lana_brit
Supporter
Lupus has inadvertently affected me through my mother who struggled with the disease for 21 years.
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For_Sara
Diagnosed at 26
Lupus causes drastic change & collateral damage. Lupus has given me strange gifts like my husband, empathy, being less demanding. I learnt to appreciate doing those...
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Sun_Shine3
Diagnosed at 10
we need to have more support programs for ourselves and our family's, to be able to understand de mysterious disease. To learn how to cope on learning how to live w...
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SISTEROMA
Supporter
SINCE MY LAST PROFILE UP DATE I MOVED TO NEW MEXICO THERE IS NO GROUP HERE BUT TREATMENT IS GOOD AT UNM AND OTHERS THINGS ARE SLOW BUT I WILL NEVER GIVE UP JUST LIK...
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Kin Folkz
Diagnosed at 18
Lupus SLE can be perceived as a curse or a blessing. I choose to view it as a blessing that is cursed by the lack of research funding, a dearth of international att...
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Mae Jhong
Diagnosed at 11
I want them to know that we are not different. Not weaker, uglier, slower, no we are nothing less. We all are just as strong and beautiful like any one else in this...
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FM
Diagnosed at 22
It is a mystery. One day you're fine and another you're struggling with it as the lupus or immune system fights your body sometimes to the finish. No one knows ho...
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Theresa
Diagnosed at 32
Lupus is a fight within your own body that you can't control and is very confusing since you don't know what to trust anymore. Medications are different, your diet ...
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Paulina
Diagnosed at 34
At first the diagnosis confused me, devastated me even...my life was turned upside down. I lost my career, my so-called friends who could not stand by to see me det...
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Nabak
Diagnosed at 12
Lupus is an extremely complicated disease that affect every single aspect of a persons quality of life. Loved ones : personally I just want my loved ones to underst...
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Angie C
Diagnosed at 36
That lupus affects any and every body part, and while I may look fine I am always tired, and something hurts every day. Just because i don't have kidney failure or...
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Rebecka
Diagnosed at 36
I have witnessed many people either treat me like what I have is contagious or like I am lazy and complain too much. The need for public education reaches as ...
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Michele
Diagnosed at 44
Lupus does NOT. Define me, it's one of MANY things I'm living WITH. It often slows me down, but will not stop me. It's difficult for others to understand, as with m...
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Damita
Diagnosed at 21
That you could look ok on the outside, but be in a lot of pain on the inside.
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LSuga
Supporter
Sometimes it doesn't make any sense at the time and years may pass with many different struggles, pains or illness, but if you know something is wrong and you are n...
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Moore
Diagnosed at 37
It's a manageable disease. I found that hot yoga helps with joint pain.
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Sunflower
Diagnosed at 30
Lupus is different in every single patient. Even my doctors don't really understand how and why my body responds the way it does in times of sickness, or even in t...
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BeingMePG
Diagnosed at 25
Lupus, as the cruel disease much of us know it to be, to me, is a debilitating disease in which we are provided a way to share a piece of us through our stories, in...
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Ggmababs
Supporter
Don't judge a book by its cover. People with Lupus do not look sick. Most generally they go to work everyday and do their household chores etc., but underneath we...
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Jeanine
Diagnosed at 28
Lupus does not define who I am but has become a part of me that I cannot ignore. I want others to know that I may look "normal" yet inside I hurt, my joints swell a...
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Alma Jaime
Supporter
Why state facilities are not educated such jails and provide better nutrition and exercise facilities
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Miss Kim
Diagnosed at 38
For me the hardest this is explaining what lupus is and how it effects my life and relationships.
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Doris
Diagnosed at 46
SLE-LUPUS HAS MANY SIDE AFFECTS SUCH AS FATIGUE, LOTS OF PAIN IN JOINTS ALL THRU THE BODY WITH SPIKED FEVER. RASH IN THE FACE AND SOMETIMES IT COMES WITH SJORGENS D...
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Erin
Diagnosed at 16
I was diagnosed at 16 in February 2001. I am now married with 2 amazing children! Which I was told I never would have. My husband is an amazing man and my complete ...
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BREE
Diagnosed at 43
I WAS DIAGNOSED WITH LUPUS 5/2013. MY SUGGESTION IS IF YOU FEEL SOMETHING IS NOT RIGHT DONT LET THE DOCTORS WRITE IT OFF AS NOTHING. WHEN I THINK BACK I HAD BEEN HA...
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Cakeladie
Diagnosed at 26
I was told I had lupus when I was pregnant with my second child. My first pregnancy went fine but with my second child anything and everything went wrong. One day...
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strongnow
Diagnosed at 17
Lupus is a very confusing illness we dont know what brings this on. I have had Lupus half my life and at first was very hard almost lost my life several times. It i...
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Jasmine
Supporter
Lupus is a disease that has no cure, it is permanent. There are only treatments available to treat the condition, depending on the type of lupus that may have. Lupu...
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Lupus in L
Supporter
Lupus has changed everything in my life and has made me give up so much. I am very fortunate because I have a very supportive family and my employer is very underst...
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Katie
Diagnosed at 25
Lupus comes in all shapes and forms; there is no same-case scenario of symptoms, flares, or problems. The one common hurdle all those living with Lupus have is the...
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Tamara
Supporter
It took a while before the doctors diagnosed my 14 year old daughter with Lupus. She was sick a lot. She had several symptoms but the worst was vomiting non stop un...
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AsiaFaunt
Diagnosed at 17
Even though I am young with Lupus does not mean I have it easier then someone whose 45 with lupus. As a young women with lupus I think i have it harder. its hard to...
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Sheila
Diagnosed at 41
The hardest thing about living with Lupus is the lack of understanding. So many people do not know what Lupus is. When I was seeking a diagnosis, the first doctor I...
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alondra
Diagnosed at 20
I would like more support from my husband. I also would like doctors to refer us to nutritionists, cus it does matter what we eat. changing our diet will improve ou...
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KatyBeth
Diagnosed at 13
My dad told me once "Pain is inevitable; misery is optional." From that moment, I knew that I had to make a choice. I have changed my personal outlook on having Lup...
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Dina
Diagnosed at 27
I was diagnose with Lupus at 27. I had just graduate for Pharm Tech School.I had a very bad cold I went to the hospital they told me I had pneumonia I said ok, when...
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Jan
Diagnosed at 39
Lupus has taken so much of my life from me. Having always been an active person I can no longer enjoy the activities I once participated in. Even daily tasks have...
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Eileen
Diagnosed at 17
Just because I look ok doesn't mean that I feel well. Lupus is a silent illness.
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Stefania D
Diagnosed at 14
Lupus is unique in every individual having the disease. Lupus mimics other medical conditions/diseases and can be misdiagnosed.
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Michelle
Diagnosed at 20
I want others to know that lupus is something that can't just be ignored. If you know someone with lupus, the best thing you can do is be understanding and supporti...
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Emilia
Supporter
Lupus is something you don't want to be messing around with. It is unpredictable. You don't know how you're gonna wake up the next morning. It's always a mystery. Y...
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Rosemary
Diagnosed at 47
I was told, I had lupus SLE after my stroke, but the doctors say I could of had alot longer, it's runs n my dad side of the family, it all started when I had the f...
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AnaDani
Diagnosed at 16
although there is no known specific cause for lupus, you can always do something to support people that is living with this condition
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Guillermo
Diagnosed at 38
For me it's important for people to realize Lupus has no face other than that of the person dealing with it. No case or sypmtom is the same. It's a game of mind ove...
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Angelica
Diagnosed at 9
Every day is a constant battle. A simple mistake can kill you or leave you scared forever. Only with a strong heart and soul can you survive.
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Patty
Supporter
Lupus is a very debilitating disease. It affects not only the patient but the entire family as well. It takes control of your life little by little. Medication in...
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Patrisha
Diagnosed at 39
I went to the ER with breathing difficulties , the Dr told me I had pneumonia They told me people my age don't get pneumonia without having HIV,...so for two week...
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T Kaiser
Diagnosed at 77
Although I was diagnosed last year, I must have had lupus for over 15 years, during which time I had gone to various M.D.s for different ailments, each time the tes...
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Barbara
Diagnosed at 42
When I was diagnosed in 1993, the doctor told me I had probably been living with Lupus since my childhood/teen years. I went to my dermatologist for a rash that wou...
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Teina
Diagnosed at 46
I was diagnosed with Lupus 10 years ago. Underwent all the recommended treatments at the time. Plaquenil, prednisone, methotrexate, and 23 meds a day. I gained 50 p...
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Ellen
Diagnosed at 33
Lupus is a hidden, debilitating disease that is unpredictable. I never know from hour to hour how I will be feeling. The pain and fatigue makes it hard to attend so...
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Monica Caj
Diagnosed at 28
I always explain that lupus is an autoimmune disorder that affects people differently. Sometimes I feel fine, but other times I can barely move. This week my body...
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DuckyDay
Diagnosed at 47
If you do NOT have Lupus, ask, learn, try to understand more. It is more common than soooo many other conditions, and yet people never seem to remember what it is....
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Fraya B.
Diagnosed at 35
My Lupus journey is not unlike millions of others. This disease has invaded my body, mind, spirit and that of everyone I love. There is no one simple word to descri...
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Mary
Diagnosed at 43
I want people to know that Lupus is real. I struggle with it every day. It is a real disease. If you have a family member or friend who has lupus, believe them, lov...
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Kari's Mom
Supporter
My daughter, Kari, was diagnosed with lupus when she was 10. She passed away in May of 2003 at the age of 20. The lupus had attacked her muscles, her kidneys, and t...
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AnnaLB
Diagnosed at 24
Lupus does not have to be the end of the world. I was diagnosed 6 months after having my second daughter. I have lived with it for 11 years now and still do not und...
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Cindy
Diagnosed at 20
Ask us about it,don't ask how ya feeling today cause inside you want to say something like I'm screaming on the inside with pain all over.I just want to cry.Im not ...
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Penny B.
Diagnosed at 44
I worked as a CMA for two internists when I was diagnosed with lupus; it attached my brain, kidneys and joints I'm in pain all the time. I undergo chemo and have ...
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Debra Olce
Diagnosed at 54
I want others to know that Lupus is a disease that is insidious, it is always with you and when you think you are OK, it kicks your ass! It is not anything that can...
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Cathy R.
Diagnosed at 41
Everything you hear is TRUE. It's a painful, baffling, exhausting disease. Unless you have it, you can't imagine it.
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dfern
Diagnosed at 38
It always hurts. There is no such thing as a day without pain. There is only less or more to define it by. I hate being asked "how do you feel today?" It means yo...
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Maria Vega
Supporter
Louus is a desease that killed my dughter Cristina Vega on janury12,2013 we saw her go through so much her swelling of her joints the way these desease took over he...
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Susan K.
Diagnosed at 30
I want people diagnosed with lupus to know that you can LIVE with lupus and be HAPPY. Your attitude is everything! Having lived with lupus for 22 years, I know it's...
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CHEnJZUS
Diagnosed at 15
Lupus is a disease attacking so many in different ways. It affects all ages and ethnicities of people. For me I keep myself encouraged by saying, " Yes I have Lupus...
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Grace
Diagnosed at 38
Lupus is a serious disease and presents with varying symptoms which makes it difficult to diagnose. Oftentimes a person with Lupus will look normal and healthy but ...
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s8mvillq
Diagnosed at 22
I am still new to all of this.
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JRICE
Diagnosed at 27
LUPUS SUCKS! But it could be worse. However, lupus is my reality and I choose to live with lupus. I allow myself the occasional pity party but don't look to others ...
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chelly
Diagnosed at 16
Lupus has changed my life so much from loosing friends but then gaining support and friends that understood me. I am a fighter of SLE as well as a support since my...
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Tippy
Supporter
Lupus is a debilitating and cruel disease that can go undetected by doctors for years because it mimics other diseases. There are many autoimmune diseases and Lupus...
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Quantrice
Diagnosed at 28
I've been living with SLE Lupus for 4 months now, and it's definitely been a life changer for me. I've had to learn how to adjust my life around my health and it's...
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Carol
Diagnosed at 17
Lupus is a very painful disease, but if you have it you shouldn't let it take over your life. Always stay positive and never say you can't do something because of y...
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MsGiggles
Diagnosed at 12
I want awareness for Lupus to be spread. It is a cruel disease for anyone to live with.
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GChel
Diagnosed at 11
If left uncontrolled, it can literally destroy your life.
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Maria
Diagnosed at 21
Lupus, a disease that affects many and at the same time a disease that we know little about. The term "Lupus" is Latin for the word wolf, this name was given to the...
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*MONICA*
Diagnosed at 14
Lupus is a chronic illness that not only hurts the person diagnosed but those around them as well.
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Estela
Supporter
Lupus is one of many disorders of the immune system known as autoimmune diseases. In autoimmune diseases, the immune system turns against parts of the body it is de...
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yareni<3
Diagnosed at 16
I want people to know that Lupus is a painful draining awful disease to live with, but as painful as it is, it is not impossible to live a long normal life. Just do...
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garden
Supporter
I was diagnost with lupus when I was 18 years old, at 26 years lupus was no longer in my body at that moment I felt bless, am 41 years old now there is no sign of ...
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Keshia
Diagnosed at 35
I was diagnosed with SLE a year and a half ago. It is truly a cruel mystery that wreaks havoc on your body from the inside out. Lupus survivors not only struggle w...
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Raquel
Diagnosed at 25
Don't let the illness get to your head or you will fall deep in Depression. Just because you have Lupus doesn't mean life is over. Never give up, never look down!
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Danielle
Supporter
I am not Lupus. I am a patient who lives with Lupus. Over the past 22 years I have learned to not allow it to control my life, but to live my life the best of my ab...
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tayza
Diagnosed at 18
I want people to know that lupus is a real, debilitating illness. It's not an excuse. It's painful, and often embarassing. It's also devastating in many ways.
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Sasha
Diagnosed at 25
I hear it gets worst before it gets better!!
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Nicole
Supporter
Our peers need to be made aware and educated about Lupus. Almost every time I mention that my mother was diagnosed with Lupus, most people ask, "What is that?" I fe...
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olivia
Diagnosed at 33
I've had active lupus(SLE) for 5 1/2 yrs now. There are days that it hurts to breathe and some to wear I can say I feel good. There are many faces of lupus, not all...
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lncatalan
Diagnosed at 38
I was diagnosed a week ago,after a year of fatigue joint pain sores in my mouth, going to a rheumatologyst that said if yu need pain medication go back to your PC...
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itsjustmel
Diagnosed at 12
Lupus is a constant battle but manageable if you dream it to be possible. It's an everyday struggle & incredibly painful but you stay positive then you may make it ...
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Blexican
Supporter
Lupus is something not to mess with. It mimics a lot of other diseases. Lupus is becoming popular so more people are aware of it. I've noticed everytime I tell some...
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Tanya
Diagnosed at 39
I would like to tell people out there, that for me it is very hard to deal & accept the fact that YES I have Lupus! Not only do I have Lupus, I have Fibromyalgia, A...
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Ashley
Diagnosed at 24
I would like to tell people mainly about how hard it is to live with lupus, how painfull it can be, and how restricted your life can be living with this disease. On...
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SCastroSD
Diagnosed at 26
Lupus doesen't control my life. Im in complete control over my lupus.
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Vivian
Diagnosed at 52
Looking good on the ouside does not mean I am OK - Take a minute to really hear me or don't ask. When I say I am tired, fatigued and in pain...it is not in my head!...
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LindyPham
Diagnosed at 17
I want everyone, every single person, to learn about lupus, and what it is. And how it affects lupus patients, and the people around them. I want others to know how...
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TIFFANY
Diagnosed at 27
THAT IT IS REAL AND THERE IS MORE PEOPLE THAN YOU KNOW OUT THERE THAT HAVE IT AND JUST TO RESEARCH IT AND LEARN ABOUT IT.
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TheMaryMax
Supporter
Although you may be struggling with Lupus or Lupus type aliments being diagnosed is very difficult. You have to show certain signs for a doctors to take you serious...
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IslandGirl
Diagnosed at 24
That Lupus Sucks and it causes a lot of pain and I'm always fatigue : ( I don't want people feeling sorry for me but to learn more of Lupus so I can feel comforted ...
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loribee
Supporter
I want others to know that there is hope and they are not alone. My husband aka The Burly Man had his first ER visit June 17th 2009, eight months later on February...
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Ewa
Diagnosed at 48
This illness changed my life forever!I have no understanding from my kids and friends,I am i pain almost every day and I feel that I am slowly but surly close to de...
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Yvanna
Supporter
There is no known cure for Lupus and the underlying factors causing Lupus are unknown. I was very surprised at how many people have no clue to what Lupus even is. I...
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SUMMER L
Diagnosed at 28
IN 2008 I WAS DIAGNOSED WITH LUPUS I HAD NO IDEA ON WHAT THIS HORRIBLE DISEASE WAS SO I DID LOTS OF RESEARCH AND I AM STILL DOING LOTS OF RESEARCHING ON THIS LIFE C...
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Debbie Alf
Diagnosed at 50
Lupus is a very frustrating disease, making each day seem like a struggle just to survive. I was diagnosed fibromyalgia and then with borderline lupus last year wh...
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Lydia
Diagnosed at 34
Looking from the outside most wouldn't guess that I live with Lupus.I'm not yet forty, but often I experience pain and exhaustion that would seem more common in peo...
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Sandra
Diagnosed at 53
That no matter what we look like...don't asume were ok because the pain is inside!!
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DebsFight
Diagnosed at 32
Just because we look well does not mean we are feeling well. Living with Lupus and not dying from it is the goal. Everyday is a battle to walk and breath.One day ...
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Esmeralda
Diagnosed at 17
Lupus does not control your life. We have the power to live life around our disease and not let it get the best of us. Though living with Lupus is hard, we learn so...
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JMeridith
Diagnosed at 22
Lupus does not discriminate. As a 22 year old female, I had never heard of lupus when I was diagnosed. I looked healthy, led an active lifestyle, and thought that l...
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rkymtroxie
Diagnosed at 51
It is the most frustrating thing I've ever been through. My main problem is the chronic, severe fatigue I suffer from 24/7. I also suffer from chronic pain, but t...
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g romaine
Diagnosed at 15
I am 61. Onset was age 15. I have had my SLE lupus symptoms attack may parts of my body over the years. Lupus is an interesting disease. You look good on the o...
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Holly
Diagnosed at 33
1. Most doctors don't seem to know enough about to diagnose it or help you. Ev 2. It is hard to convince people that you feel sick when you don't look sick. 3. I...
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Mary
Diagnosed at 18
Lupus is a disorder where your whole body is basically attacking itself from within. It makes you very tired and weak. Butterfly rash is a common symptom. Lupus c...
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Audrey C
Supporter
A person with lupus has there good days and bad days. They can never plan vacations and some activities or limited.My daughter was diagnosis with lupus sle there ar...
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Denise
Diagnosed at 12
Lupus changes the way you look at yourself. It is a disease that can take over any part of your body at any time & it has many disguises. That's why it is so hard ...
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mrs cathy
Diagnosed at 36
Lupus is a life changing condition that is very hard to control at most times. It began in my head as discloid, went to sle in a year!
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Cherlyn
Diagnosed at 33
Lupus affects every part of your life. Even though you may look healthy, it is always there. The fatigue, joint pain, etc. never goes away. Plans must sometimes b...
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Brandon F.
Diagnosed at 17
Lupus is always considered a "woman's" disease, but even men can get it. This is a disease that can affect anyone’s life, male, female, and all ethnicities. It is...
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raawrnicol
Diagnosed at 16
It really is a life-changing event. Not only was I affected, but family members are highly affected as well. It really gave me a chance to realize how precious life...
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Brandi M W
Supporter
I may look healthy on the outside, but on the inside I struggle everyday with aches, pain and fatigue.
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jajajanea
Supporter
Raise awareness about symptoms, diagnosis, and living with lupus.
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Larissa
Supporter
Lupus is a very dangerous disease if not treated correctly. It has changed many lives. Please learn more about the disease and support those you know who have Lupu...
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Veronica C
Supporter
Lupus is a dangerous, degenerative disease that can affect any and all of the internal organs. It is difficult to diagnose and it can be triggered by sun, by stress...
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Cheryl
Diagnosed at 25
Fatigue is such a major part of the illness.
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Valerie
Diagnosed at 35
Lupus is LIFE CHANGING. My life today with Lupus is NOTHING like my life before. The KEY to living with Lupus is early diagnosis and proper control with medications...
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scrappintc
Supporter
That Lupus s a real disease! We do not hear enough about this disease to help educate people on how to get diagnosed, the symptoms and signs etc. Getting diagnose...
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Wendy
Diagnosed at 26
It is a very painful and debilitating autoimmune disease. Just because you can't see it all the time doesn't mean it's not there!
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DeanaMarie
Diagnosed at 34
Living with Lupus is a daily struggle. 90% of people affected by Lupus are women. Children are affected by Lupus too. There is no known cure for Lupus. We need to h...
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Bettina
Diagnosed at 20
Lupus is a life commitment. It is a serious disease with treatment an individual can live a full life. Health becomes a number one priority as learning to cope as ...
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Lisa
Diagnosed at 37
We may not look sick but it takes everything we have to do the simplest things.
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Malesha
Supporter
Lupus is an unpredictable disease and can attack at any time. I deal with joint pain, fatigue, skin rash on my face, alopecia. Its a lot to deal with.
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SnowhiteVW
Diagnosed at 35
It is a painful disease that has taken years to show itself. Joint pain, facial rash and skin rash throughout the body. The joint pain in hands and fingers is unner...
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Sapphire
Diagnosed at 26
I was diagnosed with Rheumatoid Arthritis in April/May of last year, 2011. I had a couple blood tests done and when I went back to see my Rheumatologist, he told me...
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Vero :)
Diagnosed at 15
If you or someone you know has lupus, it is not the end of the world, even though it may seem like it is. There are very effective methods of treatment to control l...
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Wendy
Diagnosed at 27
Lupus has a common set of symptoms, but manifests itself differently in each person. It spans a diversity of people and a diversity of ages; however, for unknown re...
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Jessica
Diagnosed at 21
Lupus is a disease that affects a lot of people in this world, a disease about which not many know. This autoimmune disease causes one to have no immune system and ...
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priscilla
Diagnosed at 50
KEEP GOD FIRST AND ALWAYS HAVE A SUPPORT GROUP AND OF COURSE FAMILY IS IMPORTANT. I HAVE SLE AND HAVE MASSES ON MY BRAIN.I CANT REMEMBER THINGS.I HAVE LIVED IN THIS...
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MTapia0918
Diagnosed at 44
Lupus is still a mystery even to those of us who have been diagnosed with the disease. And yes-it is a disease. A REAL disease. Lupus affect thousands of people in ...
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Elizabeth
Diagnosed at 27
Be patient with those suffering from autoimmune disorders. Sometimes we look fine, and we are great at putting on the happy face. We don't want sympathy, just under...
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Talena
Diagnosed at 33
People with lupus have a 5-13% change of their relatives developing lupus.
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Lolo
Diagnosed at 13
Lupus is such a multidimensional disease that there is no way to put a title on what exactly lupus will do to a person. Not only is it physically exhasting and take...
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kshiga
Diagnosed at 16
Your life maybe limited by Lupus, but don't let it define who you are!
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Connie
Supporter
I want people to know do not let the diagnoses of lupus to hold you back!
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Karen Tran
Diagnosed at 15
Lupus is not contagious, so please don't be afraid of people who have Lupus. We are not dangerous and we are no different from others who do not have it.
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Cristal
Supporter
Lupus is a horrible disease! Some people don't know about and many think it not a serious thing but it is. It also painful for the person who has and also for the f...
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Heidi
Diagnosed at 18
Lupus is a battle of your body’s cells… except it’s not the good cells fighting the bad, it’s good vs. good. It affects every aspect of your life whether you know i...
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cbutterfly
Supporter
i want others to know that lupus is like an opponent that starts small and when it sees your winning it brings the big guns from there and sometimes sucker punches ...
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ale28
Diagnosed at 9
It makes you very tired and sleepy all the time.
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Mary
Diagnosed at 17
Lupus is a very serious autoimmune disorder. Lupus makes you very tired and it effects your whole body from to bottom. The symptoms are: butterfly rash, hair loss...
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Shanita12
Diagnosed at 29
Just because you cannot see it, doesn't mean it's not there.
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sephra
Diagnosed at 22
I want the world to come to know what exactly lupus is and what it does to the body and how it impacts peoples lives and exactly how serious lupus is and how painfu...
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Maria
Supporter
That it is a serious disease and needs more attention in the media and resources. Also just because they don't look sick doesn't mean they aren't in pain.
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Mat
Supporter
Lupus is more common than Leukemia, Multiple Sclerosis and Cystic Fibrosis. It is important that people become more aware about the disease. It is my sincere...
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tiffo
Supporter
debilitating disease need more research can affect your children
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andy chuan
Supporter
we need more research
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Valerie
Supporter
For people like me lupus is an invisible disease. No one can tell that I have it and I used to think it was a good thing. I believe that people don't see this disea...
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Stefanie
Diagnosed at 26
It is more common than commonly perceived.
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Kathleen
Diagnosed at 10
Lupus sucks! But if you let it, it can also make you a better person.
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Deedee
Diagnosed at 30
I have Discoid lupus, i have loss over 50% of my hair from this. I live with the pain when it comes to doing my hair. Only a few friends know about this. Now you g...
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Jamie Z
Diagnosed at 27
That you are not alone and that there is hope of feeling better and living a full and healthy life despite having lupus.
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happajane
Diagnosed at 13
I want more doctors to be aware of the many different diseases out there. But not just doctors, i want parents, and children to have some knowledge of this disease....
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ShirleyG
Diagnosed at 13
It's not as easy to deal with and you can't automatically judge someone.
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MrsLaroche
Diagnosed at 27
While looking perfectly healthy, we are secretly ( or sometime not so secretly) dealing with pain, being uncomfortable, and the struggle of how to explain this to o...
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Jocxie
Diagnosed at 27
I have lupus, and I am still learning something new everyday. I now know pain. Thank you to my family and friends who help me go through my everyday.
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Miley
Supporter
I don't really know much about lupus. I only know that it is a disease where the body's immune system becomes wild and attacks the good tissue. I also know that a f...
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ZURITA
Supporter
That it is not a joke and that there are people who suffer and they always try there best to over come it. That there can be a cure and we should help all those peo...
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ANDREA A.
Diagnosed at 15
It took a long time for Doctors to diagnose me with Lupus.
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Ghurl tank
Supporter
It's a debilitating disease that wounds the emotional stability as well as the physical well being of those afflicted with it.
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Denise
Diagnosed at 39
Lupus is a life altering disease with no cure. There are medications to help with the chronic pain but continued education, research, and support is needed to help ...
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Julie
Diagnosed at 34
How devastating it can be not only to the body but to the spirit and mind as well. It is also so important how family and friends support on all levels assist us in...
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Icar Napiza
Supporter
I'm scared... I am feeling well.. I don't look sick.. I thought I was just feeling normal. I just went to my doctor to get a topical ointment to apply to my facial ...
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diana
Supporter
I'm just getting to know this disease, and I come to see that it has its challenges. I see it everyday with my daughter, she will wake up tired and with aches she a...
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Olga
Diagnosed at 42
You can have SLE, no organ involvement, but it can severely affect you in so many ways. It said that you can still lead a "normal" life, but what is "normal" when ...
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Burly Man
Diagnosed at 46
Mr. Lewis story starts out on January of 1985 as he sat down one Saturday afternoon to watch a martial arts movie. Six years later he wrote down detailed notes of ...
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bbkoala
Diagnosed at 50
Lupus is a word I chose not to live with... Yes I have Lupus but I don't chose to be a Lupus Victim... I run, too hard sometimes, I swim , too hard but I am so bles...
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SoshiSays
Diagnosed at 36
Nobody knows your body better than you do! If you know something is very wrong, don't get pushed aside by doctors. It is very easy for them to eliminate causes but ...
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SISTEROMA
Diagnosed at 42
SINCE I HAVE BEEN TOLD I HAVE LUPUS NOW I HAVE LOST MY HAIR BEFORE I WAS TOLD I WOULD GAIN WEIGHT AND GROW A LOT OF HAIR WELL I AM IN THE BACK WARDS AND THEN ALL ...
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Carly
Diagnosed at 14
Lupus is not something to shrug off because it's not as easily diagnosed or managed as some other diseases and afflictions can be. It can be unpredictable, painful,...
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CHRISTINA
Diagnosed at 25
This disease is as devastating as cancer but still many people know nothing about it. I often feel that this is the Silent Disease. You look completely normal on ...
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DanielBeck
Diagnosed at 38
Lupus is like an assassin. It creeps into your life & digs in its claws before you know it. It hides & disguises itself, changing & deceiving doctors, medical tests...
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Frances
Diagnosed at 33
Lupus is a silent disease that's hard to diagnose. Some people don't understand that there are times when you have alot of energy and can do almost anything. Then t...
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Stephanie
Diagnosed at 32
Lupus is a serious disease and a lot people just do not realize what we endure on a daily basis. Everyday you wake up feeling ill, fatigued and in pain. There are...
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heyyjasmin
Diagnosed at 15
Lupus is not very common when it comes to diseases. Many don't understand what it is or how it's caused.
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Friend
Supporter
That people with Lupus are able to live like anyone else, with a job, family life and reasonable success in managing their condition....and share to the extent they...
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Tanya Sarg
Diagnosed at 21
Lupus can be debilitating and often impacts life in ways you won't know until many years after diagnosis. I was adopted and all we know is that I'm Native American...
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Jennifer
Supporter
I want people to know that there is no known cure for lupus and more research needs to be done in order to find one.
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wednesday
Diagnosed at 45
people who have lupus may look fine, and like "themselves", but feel anything but. for a long time, i felt like an 80 year old person lived inside my body. my joint...
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Sylvia Val
Diagnosed at 21
I would like people to know that Lupus is not a death sentence and that just cause people look normal with Lupus does not mean they feel well on the inside. In my ...
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Bev
Diagnosed at 25
Lupus affects all of us uniquely and even though we may look fine on the outside, chances are there is a battle going on inside.
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Sarai
Diagnosed at 30
This is a disabilating disease.One can't make plans with family, kids,or school events.One minute you could be feeling good ready for anything.Then within minutes y...
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Vickie
Diagnosed at 40
Living well with Lupus can mean finding a doctor who listens and takes the time with you to know what your issues (at that time) are. I now an leaving a great lif...
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Gloria
Diagnosed at 38
You never know when a flare will strike. You can feel fine one day and paralyzed with pain the next. Lupus HURTS!
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ALICIA
Diagnosed at 39
SPEAK UP MAKE THEM HEAR YOURS VOICE ABOUT YOUR SYMPTOMS AND KEEP ON THEM.
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Liz Ruelas
Supporter
Lupus needs the attention of the medical world. It is an illness that has come out more in the open finally. I myself had no idea what Lupus was until it affected m...
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Osiel
Supporter
Lupus isn't as well known as cancer or other illnesses but yet, it affects many people; close to 2 million individuals in the U.S. And every 30 minutes, someone is ...
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Angel Brow
Diagnosed at 33
That while there is no cure for Lupus one can live an active and engaged life. Medication alone is not enough; exercise, balanced diet, adequate rest, and above al...
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Cassi
Diagnosed at 30
Lupus is a life changing diagnosis but with the proper treatment and care you can live your life as normal as be. Don't be discouraged by the changes or the limitat...
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Teté
Diagnosed at 28
It is an everyday battle, please find a cure for this horrible disease.
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Connie
Diagnosed at 37
Even tho the Dr's finally diagnosed SLE at 37, I actually had all the symptoms at age 18. They called it RA back then, but finally had all the tests to correctly di...
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Brigette
Diagnosed at 7
Lupus is unpredictable. you never know when symptoms are coming. and the symptoms are unpredictable as well, you never know what symptom you will get.
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sandee
Diagnosed at 27
No one should have to suffer from a disease like this, ever. SLE is the hardest disease to live w/because it is ever changing, and is full of most other illnesses a...
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Rebecca
Diagnosed at 27
Lupus attacks the body in so many different ways it can be very hard to diagnose. You can feel fine one minute and suddenly feel like your just going to die. The pa...
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Evita
Diagnosed at 16
Lupus still seems to be in the dark, but I am happy to see that awareness is spreading. When people ask me how I am doing and try to comfort me in a time of need, ...
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max
Supporter
I want others to fully understand that Lupus is an Autoimmune Disease that does not only effect the people who have it, but also effects their family and friends. I...
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Linda
Supporter
It is a crippling disease.
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Amanda
Diagnosed at 15
Lupus Awareness is Fun because it is important. Living with Lupus is a constant struggle to find the balance, I want others to know while you are finding the balan...
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BabyGurl
Diagnosed at 43
It is a hidden illness. I was very sick for 2 years, went to 3 doctors, each told me I was depressed. Now, I know my body, day by day it was shutting down, at one p...
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stacie
Supporter
I lost my wife After an eight year battle with lupus she passed on feb 24 2011.
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Debora
Diagnosed at 27
Lupus affects everything in our lives. It even affects how others treat us, which is sometimes not very respectfully. The physical pain is just one aspect. Emotion...
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SAMMY
Supporter
Lupus is such a unique disease; one symptom you see in one person you may not see in another. The disease manifests itself so different to those which it attacks. ...
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Erin Vest
Diagnosed at 36
Lupus has kept me out of work and out of organs for almost a year now, and not enough is being done to find a cure.
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Camila
Diagnosed at 14
Living with lupus is sometimes like living with a time-bomb inside you that must be regularly de-fused. It is also sometimes like having braces: after awhile, you f...
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atlas229
Supporter
Lupus, a widespread and severely taxing disease I once knew nothing about, to what would affect someone I held the closest. Heres to a cure!
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Nikki
Diagnosed at 28
It is estimated that 1.5 million Americans have a form of lupus, an acute and chronic (lifelong) autoimmune disease in which the immune system is unbalanced, causin...
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JerBear
Supporter
Lupus isn't contagious but it doesn't just hurt the person who has it but the people that care about them as well.
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Antonique
Diagnosed at 12
I dont look sick yet I am. I never know when Im going to get sick or be in pain. I live life day by day happy to be alive.
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Hena Pudge
Supporter
There isn't a cure for Lupus. But one day I'm hoping we'll find it.
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Emily Ok
Supporter
There needs to be more awareness about Lupus as well as more research done on Lupus.
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hope4me
Diagnosed at 40
that it hurts and may look fine on the outside but its very painful and hurts alot in the inside. we need more people aware of this what we go through.
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michael
Diagnosed at 43
its not contagious & with me it affected my skin on my face
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Sairawr
Supporter
That Lupus is not contagious and needs further research for prevention!
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Richelle
Diagnosed at 20
Lupus is a silent, invisible and unpredictable illness. You can be perfectly fine one day and feeling terrible the next.
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Kimberly
Diagnosed at 36
That Lupus can impack your life and the lives of others really fast. Learn as much as you can.
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Karla H.
Supporter
Lupus is a very serious disease and should not be taken lightly. Someone suffering from this disease need every ounce of encouragement and support from their loved ...
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Jules
Diagnosed at 36
Day after day, lupus lives in us and impacts our lives. From fighting to get out of bed in the morning to wrestling through pain to sleep at night. A disease of con...
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Missmeg805
Diagnosed at 21
This disease varies in every person that is affected with it. Lupus is silent. People suffering with this illness need a strong support system, and people to be the...
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Mary
Diagnosed at 36
Please take the time to educate yourself about Lupus. And spread the word. Thank you.
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GMa2011
Supporter
Lupus is a chronic dieases and we can have good days and bad days. Both can last for days or weeks or months at a time.
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Cynthia
Diagnosed at 14
Lupus can mask itself as a number of things. I don't look sick but I can definitely feel it. Those who are living with lupus have good and bad days; lupus is as unp...
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Ari
Diagnosed at 12
Lupus affects everyone differently. Not everyone has the same symptoms, and it can range from mild to life-threatening.
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Nancy
Diagnosed at 40
Living with an "invisible" disease is very challenging. Just because your loved one doesn't look sick doesn't mean some or most of their days are a struggle. Someti...
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JAMES
Diagnosed at 35
I WANT TO LET PEOPLE NO THAT IT AFFECTS MALES AS WELL AS FEMALES AND BECAUSE OF THE RED SCARS ON MY FACE AND ON MY BALD HEAD ARE NOT CONTAGOUS DONT THINK IM A FR...
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JoAnn
Diagnosed at 53
Lupus changes your life and the lives of your loved ones. It's important to come to terms early on with the fact that you will only have a finite amount of energy, ...
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Lilykat
Diagnosed at 18
Lupus is NOT to be taken lightly. This disease is called the "Great Imitator" because it pretends to be other things. It's a fact: No two patients are exactly alike...
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mamauvfour
Diagnosed at 45
I want people to know that it is a disease of much more than just pain. It's so hard to get people, especially your loved ones to understand what you are going thr...
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melizondo
Diagnosed at 20
Lupus affects almost every part of your body. It is so hard to live a normal life when you have arthritis or inflammation around your organs. When you lose your hai...
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Junebug
Diagnosed at 22
Lupus dose not care what your age is, who you are related to, what color skin you have, how tall or short you are, if you have money or not, what you look like, and...
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Amanda
Supporter
You may go years without knowing you have lupus because it never flares up and you may also know from the beginning that you had it all along.
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Melissa
Diagnosed at 31
Please, when you look at me, keep in mind that not all illnesses show on the outside. SLE doesn't always make me look sick even though every step I take causes excr...
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Angie
Diagnosed at 12
I would like for others to know that lupus can impact one's life dramatically. It's a disease that gave me some limitations. However, I learned that I must apprecia...
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Nancy N
Diagnosed at 20
It is an unpredictable disease. Paying close attention to your own body is crucial. Detecting subtle changes can mean preventing a flare up.
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Izziebleu
Diagnosed at 31
Just because I don't look sick doesn't mean I'm not.
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Nicole
Diagnosed at 24
Finding and keeping a good doctor is hard...I'm slighly flaring right now so I'm a bit confused but will try to tell you more when clarity comes back...Best action ...
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Jeanna
Diagnosed at 12
Lupus -It's the disease that likes to confuse and imitate. It's a disease that can cause such inner turmoil yet you show nothing on the outside so friends and famil...
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Pilar
Diagnosed at 25
One has to treat our bodies as temples and by that I mean that we have to take care of ourselves thru diet(eating healthy) not abusing alcohol and cigarettes or ill...
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Ruth82
Supporter
I want to bring awareness to a disease that does not discriminate whether you are a a little kid in elementary school, a cheerleader in high school, or as in my cas...
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Ruth Harri
Diagnosed at 21
I want to bring awareness to a disease that does not discriminate whether you are a a little kid in elementary school, a cheerleader in high school, or as in my cas...
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Gabby
Diagnosed at 17
Lupus is a silent illness. It has brought me my most darkest moment in my life, but without it I do not think I will be the person I am today!
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Lizzie
Diagnosed at 37
Every day with Lupus is an adventure. I have no idea how Lupus will affect me in my daily life or for how long I will have symptoms.
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Berta Mila
Diagnosed at 57
That the disease is invisible but the visible is the effects of the medication tha cause immunosuppression.
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Sylvia
Diagnosed at 48
Lupus is an unpredictable illness. You can feel fine one day, then totally wrecked the next. It attacks you in different ways and can attack any organ in your body....
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Marlyn
Diagnosed at 16
Lupus is an invisible illness. Just because I look fine, doesn't mean I feel that way.
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Julie Anne
Diagnosed at 22
Although lupus is different for each of us, we are all on this journey together. Don't go it alone - reach out to local and/or online lupus support groups, underst...
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Sava
Supporter
Lupus is the great Imitator. Its symptoms mimic so many other conditions, It could be many years before you are diagnosed with Lupus.
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