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Florida

LFA, Florida Chapter
(561) 374-7780

Lupus Foundation of America, Inc.
(888) 385-8787

Sierra
Diagnosed at 41
It is very challenging living with this disease. Need to educate your family and others to understand how debilitating Lupus is. You do not look sick but you are.
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LO JACKSON
Diagnosed at 44
LUPUS CAN TAKE YOU MENTALLY TO A PLACE YOU DONT WANT TO BE-IF YOU ARE UNDIAGNOSED & UNAWARE. SEEING A DOCTOR ON A REGULAR BASIS IS ESSENTIAL. I LOST MY HAIR, I EXPE...
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oceanblues
Diagnosed at 41
That even though we do not look sick we are very sick but we keep going because many of us that live with lupus also have a family o take care of.
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Cynthia
Diagnosed at 42
When I was first diagnosed there was a sense of disbelief. That however was rapidly replaced with determination was the disease progressed. Now years later, and a f...
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Alechka
Supporter
Having someone you love battle Lupus is a very scary thing to watch. I describe Lupus as a monster for all the harm that it brings to a human body.
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Jyhjen
Diagnosed at 02
Lupus is a life changing event. From the reduction in energy to the butterfly rash that mysterious appears on my face from time to time. It alters you emotionally, ...
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Aims
Diagnosed at 24
What is lupus? I am lupus, literally it is the betrayal of my own cells against one another. It is my own iimmune system (meant to protect and keep me healthy) t...
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Karen
Diagnosed at 16
Lupus is a serious and complicated illness for which there is no cure. Most people have met someone with Lupus without even knowing it or what that meant. Awareness...
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Arlene joh
Diagnosed at 3
Lupus is one of the most complex diseases that often results in disability, confusion, and low self esteem as their lives spiral before their eyes. It is imperative...
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Zach's Mom
Diagnosed at 46
No one except other people with Lupus truly understands this disease and its effects! I have Lupus (SLE) AND Discoid Lupus on top of Sjogrens Syndrome, Fibromyalgia...
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Ms Boop's
Supporter
As a female, this disease can be dormant and misleading with weird symptoms of other illnesses. Sometimes false signals are routed to other parts of the body atta...
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Shay
Diagnosed at 15
My first words...be patient. Our disease is not as obvious as a broken leg but can be so much more disabling. Rest, eating right and taking medicines at the same ti...
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Alexis
Diagnosed at 21
Although you can not see lupus and everything it does, lupus is a chronic illness. It is a life changing illness and people need to be patient with those who suffer...
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Alesia
Diagnosed at 64
Because many people do not understand Lupus, and do not understand our health problems.
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Mi'chele
Diagnosed at 37
It is not our fault. I wish it did not exist .
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Char
Diagnosed at 58
That the fatigue, confusion and pain all change you. It is the most debilitating and unpredicable of chronic diseases and the most difficult to diagnosis.
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Jen C
Supporter
It changes so quickly. I went from SLE to Cns Lupus very quickly by way of 8 strokes. 1 massive. When people say "but you're not dying", they just don't know... It...
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Christine
Diagnosed at 20
I was struck down with Lupus in the very prime of my life.I was20. Lupus hit my Liver first, then started destroying all of my internal organs.I feel with more awar...
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Iris C
Diagnosed at 24
The first thing I learned about living with lupus is that you have to be your own advocate. Don't rely on doctors or anyone else to know how you feel and that your ...
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ChandraROF
Diagnosed at 21
Lupus is an unpredictable disease but with increased awareness we can save the lives of many and we can live well in spite of lupus. I have been living with lupus ...
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Ashlyn2333
Diagnosed at 16
When I was first diagnosed, I was 16, in shock, and did not want to learn about what it was or what it was doing to my body. As an overachiever in both school and r...
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Patricia
Diagnosed at 36
People think I play about being in constant pain. Lupus is an everyday struggle. I can't play with my kids like I used to. I can't go to the beach. My body liter...
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Toni
Diagnosed at 65
It's very hard to live with a illness when no one knows what's wrong with you not even your doctor. Try to get other opinons as hard as that is to do with the coast...
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missbrown
Diagnosed at 26
Lupus is an everyday struggle for me the er has become my second home .Lupus has ruined my life .I cant go to the beach because of the sun so i go late in the eveni...
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Sarah
Diagnosed at 18
I may look healthy on the outside, but please don't patronize, judge, or dismiss me when I tell you I hurt - daily - on the inside both physically and emotionally. ...
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Barry
Supporter
My son has had Lupus for a few years now. He looks fine and most of the time he feels fine. It is scary to know that this is going on inside of him. It is scary as ...
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fyter_kia
Diagnosed at 25
Lupus is a devastating disease that is beginning to be more common, especially in the younger community. Its a Very hard disease to deal with.
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Jennifer
Diagnosed at 23
Its somethig that tries to control your life but you can control it and try to live a normal life with it.
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Zenjon
Diagnosed at 26
People with Lupus have to know that the pain will never go away that they have to learn to deal with it. I use to think that it would by some combination of pills ...
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Leslie
Diagnosed at 42
May is Lupus Awareness Month..Please learn and help...more people than you realize have this devastating disease that is a degenerative disease where the body attac...
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Vicki
Diagnosed at 44
Lupus is a very challenging disease to live with. People with lupus have to manage every day very carefully to try to prevent flares, and getting enough rest and st...
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Nancy
Diagnosed at 37
Lupus has and continues to be physically and emotionally overwhelming. It caused the death of the life of my younger sister, who also suffered from lupus and I have...
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LMNieves89
Diagnosed at 17
Lupus is cruel people who don't understand it need to know lots of things can happen whether its kidney failure to lesions on the skin it's unpredictable and should...
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FighterTye
Diagnosed at 13
Every case of Lupus is different.I knew lupus as just swollen joints,ongoing pain and kidney damage but after I was diagnosed, mine was not like that.I have neurolo...
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Punkin
Diagnosed at 34
Lupus is a disease that affects the entire family. It's hard for the individual to understand and even harder for the family that has to be the support system. Be...
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brazzib
Diagnosed at 26
I was diagnosed with lupus when I was 26 years old I am now 42 years old. Constant pain hip ankles elbows neck knees all over. Methatrexate doesn't work so I live o...
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Kathy
Diagnosed at 40
Lupus is not always visual. Those of us who experience this may look great on the outside, which is difficult for others to understand. I have spent the years edu...
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sstoerkel
Diagnosed at 15
It can come out of no where. It is not contagious. You may have it from the time you are born and not even know until something bad happens. No Cure. No certain blo...
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Deborah E
Supporter
After many years thinking I must just be "Hypochondriac" a diagnosis was actually a blessing. This was made in 1997 and since then it has been a road of many ups an...
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Carolina
Diagnosed at 11
There are so many people out there who will be lending support, take it. It's extremely hard to go through this alone and you will find yourself stronger because yo...
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Patrice A
Diagnosed at 33
Lupus can attack anyone at any age and any ethnic backgrounds. No cure for it and allot of people dont even know what it is. Awareness needs to be spread around so ...
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Elizabeth
Diagnosed at 35
Lupus can affect anyone...it used to be by ethnicity or gender but now more and more people are affected by it. It's not selective and it is not something that can...
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Courtney J
Diagnosed at 17
Many people don't know what Lupus is but they should because someone who you don't expect to have a disease like Lupus could be sitting right next to you. It's not ...
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Catrinna
Diagnosed at 25
It can happen to you at any time!
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jalmar
Diagnosed at 71
I want you all to know that anyone can develop Lupus. I was diagnosed at a very late age, but the truth was that I had lupus since my early 30s and I did not know i...
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sonya
Diagnosed at 21
That no one can see the damage your own body is taking from it's own immune system attacking and damaging itself.
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Lisa Wolf
Diagnosed at 41
Lupus Awareness My great grandson’s name is Nicholas and he is three (3) years old. At one of his ...
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Amy
Supporter
Lupus hurts me. A lot. All the time. Non stop. Everyday. For 15 yrs already. And I'm only 29.
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Gricelle
Diagnosed at 56
Not being able to actually "see" the pain that Lupus patients endure on a 24/7 basis, doesn't mean we aren't suffering. Many of us have learned to suffer silently w...
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gina
Diagnosed at 32
Lupus is a very horrable disease there is days when you are up and days when you are down.Take full advantage of rest whenever you can,get a good surport team aroun...
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Melissa
Diagnosed at 14
Lupus is unpredictable, and can be diffucult to understand at the beginning. Little by little you begin to understand that it's all about knowing your limits & know...
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NORMA
Diagnosed at 40
YOU GET VERY DEPPRESSED, AND WHEN YOU GET LIFE STRESS YOUR BODY FEELS IT SO MUCH PAIN, AND YOUY GET TIRED OF TELLING FAMILY MEMBERS I CAN'T DO THIS OR I CAN'T GO. ...
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Amy
Diagnosed at 38
Waking up EVERY morning with my heart pounding and spiraling out of control .....? I hate this! I don't know what its like anymore to feel NORMAL. The exhausting ch...
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Maggie
Diagnosed at 43
I was a very healthy person. Then all of the sudden started getting migraines and sick all the time. The pain is daily. I am constantly avoiding people that are si...
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Gabby Mayf
Supporter
People of all races and ethnic groups can develop lupus. Lupus doesnt just affect women men can delevop lupus also.Lupus can range from mild to life-threatening and...
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Dee
Diagnosed at 23
There is no cure for Lupus...yet. While it may not happen in my lifetime I want to live my life to it;s fullest, to the best of my ability. Just because I on occasi...
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Luliz
Supporter
Its unpredictable, you never know how you are going to be feeling next morning, and that is my major problem. Always tired and depressed.
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Magdalene
Diagnosed at 25
In my opinion i can deal with everything this illness gives me except the chronic Fatigue, migraine Headaches and Hair loss. I cannot stand having my life stopped b...
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Leah
Diagnosed at 15
Lupus is so unpredictable. It took me awhile to get diagnosed simply because the symptoms i had were bases on what i felt. I was lucky to be diagnosed so early and ...
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Robyn
Diagnosed at 50
Could not understand what was wrong with me! Was this how you feel as you get older? I finally realized no it was not and set out determined to find out what was wr...
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Kaela
Diagnosed at 18
that its more painful then you think. just because you cant see it some times doesnt mean its not there or were not hurting.
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Her Story
Supporter
I want people to understand that Lupus needs to be spreaded throughtout the nation just like they do for cancer and breast cancer Lupus is a decease that affects li...
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Victor
Supporter
My Wife and best friend for 30 years was diagnosed with lupus 11 years ago.What I learned as a caregive and want others to know that to never give up,you have to fi...
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miss lissa
Diagnosed at 19
It amazes me how little people know about the various symptoms associated with lupus. I enjoy educating people when I can so they have a better understanding of no...
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Mari
Supporter
The only thing I know about Lupus that it is a serious disease that most people aren't aware of. You mention Lupus to someone and they ask you "what is that"? It is...
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Johanna C
Supporter
A lot of people say u dont look sick but they just dont know my story.I have suffured with Lupus for 23 yrs.The pain in my body gets so unbearable sometimes,Ive had...
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Natalie
Diagnosed at 41
This disease is life changing and debilitating. It creeps up on you, is brutal to diagnose and hell to endure
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Ana M.
Diagnosed at 33
Although it is a bad disease, it will depend on you and the care you take of yourself to determine how much it will affect you. The change can't only be based on a ...
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Belinda
Diagnosed at 16
Lupus is serious and can change your life in the blink of an eye. Please spread the word so you and your loved one's can get checked. Help support this disease that...
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Marissa
Diagnosed at 13
Lupus is a very serious autoimmune disease. It can affect many different places like your skin, joints, kidneys, brain & other organs. It make you very tired all th...
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Emily
Supporter
I want others to know that the effects of Lupus aren't always visible, but the condition is serious and those suffering from it should be validated as such.
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Onelove
Diagnosed at 47
Lupus is a serious disease, I may not look sick , but believe me I am . From joint pains, headaches, stomach cramps, legs swelling ,everyday is different. You never...
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KCox623
Diagnosed at 27
Every day is different, but faced with the same challenges as the day before. Everything hurts, but just because we look ok does not mean we feel wonderful. We just...
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Cristy Paz
Diagnosed at 15
I want others to know that Lupus exists and there is very little information known about it. We need to find a cure and raise money for research as this will only h...
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Cynthia
Supporter
Sufferers could possibly get help and possibly live a normal life. I have some information (product and video of actual sufferer/s) to provide to the doctors of Lup...
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Jasmine
Diagnosed at 20
Lupus is a very serious autoimmune system disorder. There isn't a cure for lupus. It affects the skin, joints, kidneys, brain & other organs. It's unknown why a per...
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KateyB
Diagnosed at 17
We may not look sick but we are. I wish people would understand how hard some of the most simple tasks are to people living with lupus.
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Melissa
Diagnosed at 22
Lupus is a very difficult illness to live with. Not knowing what tomorrow will bring is awful. Not being able to make plans in advance is frustrating. Having your f...
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Evelyn
Diagnosed at 56
I wish that people would take the opportunity to learn more about this illness.
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Jenell
Supporter
It is a disease. First it is not just a women’s disease. Men also suffer. It does affect you. There are good days and bad days. They don't always feel as good as th...
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ANGELICA C
Diagnosed at 2
No es facil para mi vivir con lupus ya que todos los dias siento dolores y molestiass. mas cuando hay tanta humedad. vi un articulo que dice que el jugo de guanaban...
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Emi
Supporter
There are days when I may be running and dancing, and then the next I will be stuck on the couch. Lupus is very unpredictable and cancelling plans or opting out of ...
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Luliz
Supporter
I live every day as it comes. It was difficult to understand why I have LUPUS, but is ok. God is there for all of us....
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Helen
Supporter
Its. A. Life. Long. Thing. And. It. Is. Painful. And. It. Hurts. It. Affects. Your. Bones. And. Muscles. I. Was. Dianosed. With. This. At. The. Age. Of. ...
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TRINA
Diagnosed at 41
Living with Lupus is difficult but it doesn't have to stop you from living a normal productive life. Your mental and spritual focus on God is the key. No matter wha...
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kelpiangel
Diagnosed at 51
Lupus is a mysterious disease...also involuntary which basically means we can't control what is causing our autoimmune system to go haywire. Sometimes my medicatio...
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alethia
Diagnosed at 30
Just because I look okay…doesn’t mean that my body isn’t under attack.
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DebraBerke
Diagnosed at 39
I am a 40 year old female living in Florida, originally from NJ. I was diagnosed with Systemic Lupus 7 months ago after being misdiagnosed with Neuropathy and RA. I...
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Tara O
Diagnosed at 22
Just because your friend or family member with Lupus "looks fine", you never know how they really feel on the inside. They may be using all their energy to go to t...
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Ms. Liz
Diagnosed at 25
I was first diagnosed with mild lupus 26 years ago. The only treatment that worked for me was a combination of prednizone and NSIDS. The very medications that help...
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resolve96
Diagnosed at 34
I want others to know that I don't want your pity.My body might be weak but my resolve is strong. When you ask how I am feeling I will most always say fine. This is...
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libramommy
Diagnosed at 25
I was diagnosed with discoid lupus 5 years ago. Discoid lupus isn't typically curable, but it is treatable enough so that it won't significantly hurt a person's qua...
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Ms. Slim
Supporter
Lupus (SLE) is a disease that can affect so many people. Lupus (SLE) does not matter what age you are or what your ethnicity is. It is a disease that affects your...
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Dayri
Diagnosed at 15
Its a silent killer. Just because someone looks fine on the outside, it does not mean they are ok. I hate answering questions like "Whats wrong? Are you feeling sic...
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Melissa
Diagnosed at 17
Imagine a jigsaw puzzle of the human body with random puzzle pieces missing. That's what lupus is. Lupus has no rhyme or reason and can attack any organ at any time...
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Tyty
Supporter
It is a chronic diseas but it it managible but unfortunetly my sis has to live with it without any treatment or medications
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MLCW7J
Supporter
There is no shame in having lupus. Acknowledging and educating others about this disease is the only way to promote continued research toward improving life for th...
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Mistey035
Supporter
I have learned that this race is not giving to the swift, but to the strong and those that will endure to the end. Through much prayer, this is no longer a burden. ...
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Heather
Diagnosed at 17
I have SLE and, like so many other with Lupus, I have a laundry list of other diagnosis related to autoimmunity. Lupus causes the immune system to attack the body ...
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TessaShoe
Diagnosed at 9
Since I was diagnosed at such a young age I've gotten a lot of add ons since my original diagnoses. I now also had JRA, Fibromyalgia, CPS, and other joint related i...
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Angela
Diagnosed at 22
Just because I don't "look sick" doesn't mean that I'm not. When asked what's wrong and I respond "I don't feel good", understand that that doesn't even begin to ex...
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Sophquest
Supporter
http://sophquestphotography.deviantart.com/journal/MAY-LUPUS-Awareness-Contest-299672490#comments
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Sarah
Supporter
To FIGHT as hard as you can and not give up the activities you love! If you feel you want to stay in bed....GET UP! Never give in....be happy with your "higher ab...
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Karen
Supporter
I want others to know that Lupus can be just as debilitating as other diseases just most of the time patients with Lupus don't look sick but it can attack any organ...
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Tanya
Diagnosed at 18
I have lived with Lupus for 12 years. I have had many ups and downs. I thank God everyday for my wonderful husband, family, and friends who are in my corner of this...
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NicöleLynn
Diagnosed at 27
I always knew there was something off. From a young age I was shuffled from one specialist to another, yet no one could identify the problem. After 2 decades of not...
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Maria
Diagnosed at 27
When I was diagnosed at the same my niece at the age 14 was diagnosed with the same but at first they thought it was cancer we got scare. Same week I came out of ho...
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DaimisE
Supporter
I want people to know that there is no cure for Lupus. With that said Lupus can affect anyone in your family, especially women. We should all try our hardest to fin...
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Vickie oli
Diagnosed at 25
People often wonder and comment why I always walk around with a smile on my face, this is because I am truly blessed to have the ability to share another day with ...
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Deeine
Diagnosed at 50
I have lupus, lupus does not have me!
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trindi78
Diagnosed at 33
After being diagnosed with lupus now for four and a half months, I want others to know that this disease definitely needs more ATTENTION within the medical communit...
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mathis6kid
Diagnosed at 48
That you need to fight for yourself. You are your voice. I knew something was very wrong with me for many years but I stay with my old primary care doctor for a l...
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K. B.
Diagnosed at 61
That just because I am able to play tennis does not mean that there is nothing wrong with me. I fight fatigue daily and the syptoms come and go. Aslo you can have o...
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GA LA - CA
Diagnosed at 49
Lupus causes me to be allergic to medicine. I do not know when I can have an reaction. So those of you who can take medicine please be thankful. You don't know wh...
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UWQuita
Diagnosed at 21
This is a very individual diagnosis, no one has the "same" disease. Just because you know one person with lupus doesn't mean you know how it affects other people li...
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Misty
Diagnosed at 30
Lupus can mirror other symptoms and it took awhile for doctors to figure out what was going on with me. Also, lupus causes so much pain on a day to day basis but th...
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lucero13
Diagnosed at 43
it is hard to deal with lupus specially when you have other conditions related to it or unrelated..the pain,tired,and as it progresses..but you need to stay strong ...
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Justagirl
Diagnosed at 39
I grew up with all the symptoms, the pain, the rashes, several illnesses unexplained. Till at the age of 39 I had 9 operations in one year! My doctor then decided s...
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Jessie
Diagnosed at 23
Just because I look okay and act okay doesn't mean I am. I hurt and I'm tired. A little help goes a long way.
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soblessed
Diagnosed at 12
Lupus is very serious disease and it can affect many parts of your body.It is very important that you read up on this disease because you could really be having sid...
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Johanna
Diagnosed at 28
Lupus affect each one in many different ways but one way that is the same is the suffering we all experience as well as the loved ones who see us suffer with each f...
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Erin April
Diagnosed at 22
Lupus is a very serious disease. You may not look sick. It may seem you feel fine but this isn't always the case. If you or a family member has lupus please take it...
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Maggie
Diagnosed at 55
It was along hard road to diagnosis and treatment. Not able to find treatment in my area. So hard to understand as each flare is different. You have to know your bo...
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Mrs.G
Supporter
I want people to know that its not the end but just the begining of a new journey. I was diagnosed in 2008 but believe I've had Lupus for many years. I am a wife an...
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Nicki2121
Supporter
This disease will test the will, strength, and faith of its sufferers! With enormous variability in symptoms and a largely 'trial and error' treatment plan, Lupus i...
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Ruby Murph
Diagnosed at 44
Don't fire people when they go on medical leave due to a flare
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Alicia
Supporter
With the experience I have endured during the last 3 years, I would like others to know that this is a serious disease and once you have it you should never let you...
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Twichette
Diagnosed at 53
That, when you ask how I am, and I say it depends on the day, I REALLY mean it. Lupus is never the same in any two people. AND it is never the same in any one pers...
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sonny
Supporter
Lupus can be very difficult to diagnose, and is very frustrating to those affected, through the suffering of the symptoms, and misdiagnoses.
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Annabelle
Diagnosed at 38
That we are just as sick and tired of being sick and tired as our family and friends are of us being absent from all the things we used to be able to do. It can be ...
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kelly rive
Diagnosed at 17
Lupus is an autoimmune disease where the body's immune system becomes hyperactive and attacks normal, healthy tissue. SLE is more severe than discoid lupus because ...
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Suanle
Diagnosed at 33
Lupus is a difficult disease to diagnose because most individual with lupus, including myself seem perfectly healthy.I want to find the cure......
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Jacqueline
Supporter
That no one morning is ever the same! I can get up tomorrow with minor aches and the day after i can not even get out of bed! What many find easy things to do are n...
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Kenia
Supporter
This is a very serious disease and hard to cope with. We are always very tired to please don't think we are lazy we get things done maybe at a slower speed but it w...
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Gale Vigil
Diagnosed at 30
Building a Support group in Jacksonville, FL
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Lesa Taylo
Diagnosed at 21
You are not alone...It is not contagious...It is very real..I am not crazy...We just want to be heard people with Lupus loved and supported...Never give up!! put on...
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Brenda
Supporter
Lupus does not discriminate who it attacks.
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Amy
Diagnosed at 22
Lupus is not just something that is there one day and gone the next. its something that i personally suffer daily. People think those with lupus fake alot and are j...
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etwist1998
Diagnosed at 43
If you are having symptoms of fatigue, numbness in arms and legs. Please have your General Practice refer you to a hematologist for a full DNA work-up. My DNA work-...
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Valeska
Supporter
There will be good days and bad days, but I know it will teach you to appreciate the small things. It affects every BODY differently some more then others. Hel...
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Beverly
Supporter
My 12 year old daughter was diagnosed with Lupus two years ago. We have been on a roller coaster ever since. I lost my job because I could not care for her and work...
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barry
Supporter
Nasty, Nasty disease!
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Jessica B
Diagnosed at 22
When people ask me this question I stop and think for a while, so many key things that I want people to understand about this diesease but then I realize this disea...
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Sharmane
Diagnosed at 26
Lupus affects people differently. When someone you know has lupus, ask them how they are affected, don't immediately compare them with someone else you may know or ...
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Carol
Diagnosed at 55
Stay upbeat. Lupus attacks when you are depressed, stressed, not well rested...A flare-up has many faces. Keep track of your temperature. Low grade fever is one ...
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Steve
Supporter
My wife was diagnosed with LUPUS in May of 2010. This disease literally knocked her off her feet. It took hours just to gain enough strength to get out of bed. It e...
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cynthiap
Supporter
Lupus is a condition that is painful at times and it is hard for the person with the condition to live a normal life. In order for them to live an adequate life, th...
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Sherri R
Diagnosed at 25
Lupus is unbearable many days! Be compassionate & understanding! Continue to motivate & participate!
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Sophia
Diagnosed at 25
My journey to diagnosis was a long one. I iniially thought that I was crazy but it's comforting to know that there are doctors out there who are willing and patient...
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Janelle
Supporter
Lupus has a face. It is time for the world to increase its reach and lend more support to those living with lupus and there loved ones. Way too many people have fel...
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DJ EJ
Diagnosed at 12
This disease hides behind our skin and gives people the impression that we aren't sick because we dont look it. Lupus is everywhere and looks like anyone in any hea...
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Nikki Russ
Supporter
lupus is here and needs as many voices as possible as most of the people i come across day to day have never heard of it. my aunt fought and lost the battle after ...
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MMI510
Diagnosed at 26
Lupus is so scary because you never know what the disease will do next. The symptoms of Lupus are not only in a person's imagination; and even if you can't see it,...
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80's Baby
Diagnosed at 28
Lupus is the devils disease, there are so many different factors and symptoms involved. It does not just affect people diagnosed it affects the entire family and fr...
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ilovemymom
Supporter
I want to know everything I can, I have always heard about it but never really understood the disease.
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Bonnie Cra
Diagnosed at 54
You may look okay on the outside, but what you are feeling on the inside is entirely different. I am always saying "Really, I'm fine", but those who really know me...
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Only1Good
Diagnosed at 40
I am still me! Inside I am still that vibrant, brilliant, & beautiful girl that I always have been. I still like to do all the same things. Unfortunately, there are...
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Johanna C
Diagnosed at 22
i Want people to know it disrupts your life,I cant work i just stop the last 3yrs 2008 worked on that job 22yrs,hurting going to work in pain,Had to try to get up h...
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lindak
Diagnosed at 62
It can happen at any age. I am constantly amazed by the number of people who have no idea about lupus. They don't understand the limitaions it puts on our lives and...
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Tenesha
Diagnosed at 36
The best advice I can give is to find a dr. that will listen and not just toss pills at you. It took 3 specialist before I was diagnosed. Never never allow a dr. to...
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Cathy
Diagnosed at 8
I have lived with lupus since I was a child. what most don't realize is that every doctor wants to diagnose it themselves. Mine affects different organs each time, ...
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roseygirl
Diagnosed at 24
Lupus is different for each individual person and for me has changed my life dramatically. I started having problems in high school, but no one could figure out wha...
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robert
Supporter
How it can affect peoples bodies in different ways and how little is known about it.
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Kathy3113
Supporter
People inaccurately associate lupus with flu like symptoms. The public is not educated on the fact that it can kill, it can destroy every organ in your body, and ca...
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Jean
Diagnosed at 35
Lupus can affect many aspects of your life. From severe fatigue to pain eminating throughout the body. You can be so tired you can't drag yourself out of bed, but ...
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orchidgirl
Diagnosed at 47
If you have recently been diagnosed or have feced the challenges for a long time Lupus test the Faith,patience and the very core and soul of a woman.I have lost man...
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Robin
Diagnosed at 30
Lupus effects all aspects of your life. Everyday, you have to plan out your activities based on your energy level and pain level. Sometimes, I really don't like ta...
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Ivy
Diagnosed at 29
Lupus is an all encompassing disease...not only impacting organs, but also hormones and the nervous system. Family and friends should be as involved and understand...
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carrissma
Diagnosed at 12
i want others to know that lupus is not contagious and that u could live with it for a long time by taking good care of yourself,taking all your medications,visitin...
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maide
Diagnosed at 27
Lupus affect your daily routine, you will never be the same.the medicine is really strong so you will have to change the way you eat and live.
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kdeese16
Diagnosed at 29
Lupus does not discriminate. It can happen to any one of us. Not only so I have lupus, but my sis, aunt and cousin are all affected too.
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vikkig
Diagnosed at 35
To look at most people with Lupus; you wouldn't know that we are sick....but we are. I can be fine one moment and very sick the next. It is a disease that is unpr...
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Nikki
Diagnosed at 21
Lupus is very unpredictable, and at times, it 'shows' no mercy during flare-ups.There are so many 'layers' to this disease, one day a patient could be dealing with ...
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Yvonne T.
Diagnosed at 34
That Lupus is a life changing disease, it is called a "hidden disability" because a lot of times people don't look like they are sick, but they are more sick than y...
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MelBaToast
Supporter
Lupus is an autoimmune disease that sometimes will not show the person with lupus as "looking sick." You don't have to look sick to feel sick when you have Lupus.I...
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Yulimer
Diagnosed at 24
That is a everyday battle, I have been discriminate because the Lupus, I didn't choose this, one day just show up an since then I fight to beat it, I try to live a ...
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Melissa
Diagnosed at 22
Lupus is an auto immune disease that is NOT contagious, it is said to be inherited and it's an illness that is very difficult to live with.
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karen
Diagnosed at 28
there is no cure and it can affect any organ
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Cynthia
Diagnosed at 36
That you must be patient, kind, supportive and gentle with the person sufforing from Lupus. They are trying hard to keep up. We are tired, fatigued and are knee a...
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xpurecnrty
Supporter
Lupus is a very hard to cope with. People's daily lives are affected on how the lupus wants to act out that day and sometimes it is so frustrating cause we could ha...
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Shonta
Diagnosed at 27
Lupus is a life altering disease but it is not the end. You can still live a full healthy life. All you have to do is alter your lifestyle some & take your medicati...
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Marilyn J.
Diagnosed at 63
It took over a year for my diagnosis, and after many "bed-ridden" flares, I finally discovered that with a good team of drs., constant monitoring of your system, an...
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Caroline
Diagnosed at 13
I want people to know how common Lupus is. People always ask me "what is Lupus"? I think more people should have this as common knowlege.
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Deb D.
Diagnosed at 43
Lupus is NOT anything to take lightly! I suffered on & off for almost 20 years before a true diagnosis was made. We need more awareness and education about lupus. P...
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Tanya H
Supporter
I find a lot of peoples first question to me when I tell them I have it is "Is it contagious?" It is not as we all know.
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TajLe
Supporter
that it really effects your schooling and work.
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Elsie John
Supporter
This is a real disease and it effects every aspect of you and your families life!
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Stacey I.
Diagnosed at 34
Although Lupus is a very complex disease, if you listen and follow your doctor's orders, read up on as much as possible and surround yourself with a loving supporti...
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Carolyn
Diagnosed at 59
To be more aware of the number of people with the disease and its side effects.
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mduncan
Diagnosed at 47
That many people are under the belief that it just effects the joints.If this was only true,people need to understand the diease,I cant stand when someone says oh,a...
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faeryhrt
Diagnosed at 42
Lupus is a disease that effects everyone differently. That makes it a difficult disease to treat, deal with and diagnose. Some people go for years without a defini...
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GG
Diagnosed at 47
Lupus affects lives in many ways.Some has good days and some have bad days.I have had days where I didnt want to live anymore!But now I have it under some control s...
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JeAnna
Supporter
I have a coworker who lives in a lot of pain. There is not a large support system for her or a lot of people who even know what she is going through.
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netski
Diagnosed at 51
Many people living with lupus don't look like they are dealing with a serious disease. In fact, many don't look sick at all. This disease does not affect everyone...
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Rhonda
Supporter
I think an important thing for people to know about lupus is that it does not affect any two people the same way. Everyone has different symptoms and issues.
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Evelyn R.
Supporter
I wish that people can learn a little more about this illness. They see you and think that you are 100 % healthly and only if they knew. We need to learn more about...
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Kayla
Diagnosed at 21
I want others to understand that this disease can be hard at times. It is not easy when you feel like you can do everything but your body won’t allow it. Just bec...
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Ashley
Diagnosed at 20
Just because I have lupus doesn't mean your life has to be over. Embrace it and move forward.
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sulay
Diagnosed at 14
when I got lupus they took me that my did would not get it just because I have it. I want to know if they have a higher chance at getting it because I have it. MY f...
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Ben
Supporter
Every person living with Lupus faces their own individual challenges. The best way to be a Lupus supporter is by being understanding and open minded. We must all br...
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Sally
Diagnosed at 12
Lupus can damage any organ in the body!
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YAMI305
Diagnosed at 43
It is sad and it can make you feel lonely at times. It is greatly misunderstood by most. The daily question of "what's wrong with you today?" gets old. We really a...
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AmandaRose
Diagnosed at 19
Lupus is not contagious, and it's not scary. It's a way of life for those diagnosed, so please treat us with the same care you'd give to someone going through chemo...
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Georgeann
Diagnosed at 42
Lupus is a devastating disease. It has affected my muscles, skin, brain, heart, eyes, kidneys, lungs and joints. The lack of autoimmunity has also worn down my abil...
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Karen W
Diagnosed at 32
Lupus hurts you in so many ways besides the physical. The mental toll it takes can never be imagined if you do not understand chronic illness. "You don't look sick"...
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michelle66
Diagnosed at 44
Lupus affects you in so many different ways. One day you are so tired, and have no energy to do anything. Most days everything hurts. It is sometimes hard to do ...
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Pearlybell
Diagnosed at 54
Lupus is a real thing. It makes you sick. Not only joint and muscle pain, but digestive problems. You can't control it. I wish people were more understanding of the...
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Lisa Mitch
Diagnosed at 46
Lupus is a devastating disease, that steals your life. There is NO cure for Lupus as yet, but I am hopeful that a cure will someday be found. It is an auto-immune d...
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Mrs VGomez
Diagnosed at 28
I am greatly appreciative of all the awareness and information this site provides. Lupus is a sneaky and mysterious disease. This site has provided me with many a...
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shannons
Diagnosed at 29
lupus isn't the same for everyone. just because i look ok, it doesn't mean that i am ok. just because i can pick myself up and go to work every day, doesn't mean ...
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kdbarker
Diagnosed at 41
Lupus can be a very hard disease to live with because it affects so many parts of the body at times. The chronic illness can lead to depression which can also be ba...
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Celinda
Diagnosed at 30
We are strong if we stick together
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Clara
Diagnosed at 37
That just because I dont look sick it doesn't mean that every day doesn't come with its challenges and dificulties. I have had to learn so much about my body especi...
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Sandra
Diagnosed at 45
That not all people do nor will they have a defining line of ailments ..We all have different pain
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Dee
Diagnosed at 35
It took over 15 years to get a diagnoses. Once you get it, people still don't understand, because you look FINE.
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Anna Volpi
Diagnosed at 21
Lupus is a very complex and serious disease that affects every aspect of day to day life. It can be painful, and exhausting. It makes everything more of a challen...
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Fredda
Diagnosed at 23
Lupus is a disease which impacts millions - it reaches far beyond patients and family members. It is chronic and often devastating, even fatal for many; however, mo...
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Any Road
Diagnosed at 40
More research needs to be done into cns lupus.
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MrsMitched
Diagnosed at 30
Lupus is a scary condition to live with. It requires strength on a daily basis that I am just not able to produce. But, I'm here. I have the help of a stellar medic...
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ddmiamor
Diagnosed at 46
IF YOU HAVE A LOVE ONE OR FRIEND WHO SUFFERS WITH LUPUS.YOU NEED TO SUPPORT THEM AND BE VERY PATIENT WITH THEM..ALWAYS BE WILLING TO LEND A HAND WHEN POSSIBLE..JUST...
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Elly
Diagnosed at 41
I want others to know that there is help out there and that you could still live a good life if you listen to your doctors and take your medication.
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Annette
Diagnosed at 18
El lupus es una enfermedad muy dura han sido muchos los prosesos que eh tenido que pasar desde muy joven y con un noño que cuidar pero si sigues tu tratamiento y co...
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moondance4
Diagnosed at 29
I want people to know that just because a person does not look sick does not mean that they don't feel well. Just imagine having flu symptoms on a daily basis that ...
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JLR
Diagnosed at 41
People with Lupus have to learn to say no. After many years of being a Type A person it is very difficult to learn how to do only those things that are truly impor...
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Sherri
Diagnosed at 41
It is a maddening disease which takes it toll on the family of the patient, especially the children. My 16 year old son has no idea who I was before lupus as I've ...
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MarisaZ
Diagnosed at 23
Lupus is life changing. It is multi-dimensional and affects every aspect of our lives and the lives of those around us. It is more prevalent than most people know a...
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Finda
Diagnosed at 30
It is a very difficult and complicated illness that does not discriminate nor does care the damage that causes not just to the patient but to those around them.
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Tintina
Supporter
Lupus is a disease that has no face. Because of that, the public not familiar with Lupus does not know how devastating this disease can be. Without support from oth...
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Erniesis
Supporter
I lost my 34 year old sister, Erin, to complications from lupus 2 years ago. She was 34 and the mom of 3 young boys. We must raise awareness and raise much needed $...
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