Facebook Twitter You Tube
Lupus has many voices.  Add Your Voice »

Illinois

Lupus Foundation of America, Inc.
(888) 385-8787

LFA, Heartland Chapter
(314) 644-2222

qpprrtppeq
Supporter
KLyIg4 wpahttshpiox, [url=http://gtfhagwfdeaf.com/]gtfhagwfdeaf[/url], [link=http://vbacmyyeqbld.com/]vbacmyyeqbld[/link], h...
View Full Profile
kendra roh
Diagnosed at 11
its hard to have
View Full Profile
AMYLYNN
Diagnosed at 37
HOW IT AFFECTS EVERYDAY LIVING,COPING , GETTING FAMILY TO UNDERSTAND AND SUPPORT YOU!
View Full Profile
Jewell
Supporter
Lupus is an invisible illness that shatters the dreams and lives of its victims and the victims families & friends! Lupus appears to be on the rise! It is a quiet e...
View Full Profile
Fern
Supporter
My fiance has lupus and I'm just here really asking for help on the subject of Support Groups in Chicago. I understand the medical aspect of Lupus but not the actua...
View Full Profile
lupie girl
Diagnosed at 47
That it is a painful cruel debilitating disease,
View Full Profile
Terese Q
Diagnosed at 39
We need to find a Cure for Lupus! Thank you to my family for their loving support... I could not get through this without all of you! Your all my Rock! ??
View Full Profile
serita
Diagnosed at 32
Please don't ignore the symptoms, get a second opinion. Some of the symptoms is same as rheumatoid arthritis.
View Full Profile
AprilMontg
Diagnosed at 14
Don't judge everyone the same. No two cases are the same, just because you know someone that is still capable of working and living a some-what normal life, doesnt ...
View Full Profile
PPedraza
Diagnosed at 42
After hearing I had lupus I broke down,scared and feeling alone. That's how we feel alone, in pain and depressed. But know this we are strong, knowledgeable and not...
View Full Profile
SADREALITY
Supporter
IF YOU HAVE YOUNG CHILDREN OR TEENAGER AT HOME, PLEASE MAKE SURE THEY TAKE VITAMINS AND EAT THEIR VEGETABLES AND FRUITS DAILY. IF THEY ARE NOT EATING PLEASE ENCOURA...
View Full Profile
Maren
Diagnosed at 18
Whenever I mention that I have lupus, one question I'm almost always asked is, what is it? Very few people are aware of lupus & it's capabilities. I strive to liv...
View Full Profile
Lovehamy18
Diagnosed at 13
that its a rare and not contagest.
View Full Profile
Maricarmen
Diagnosed at 27
Once you are diagnosed,the worries never end. You live each day fearing about what you might develop now. It affects you phisically and emotionally, too. If you hav...
View Full Profile
Antoinette
Diagnosed at 39
Lupus is a hidden disease. When I was first diagnose, the docto!r thought it was rhematism. I had extreme joint pain, yes , but it also effected my skin, my hair,an...
View Full Profile
Deborah
Diagnosed at 35
Having Lupus can rob you of the simple joys of life. You never know what or when to expect your next incapacitating flare up. People close to you don't understand w...
View Full Profile
Becka
Diagnosed at 34
Lupus is a tricky disease. One day you are doing great, the next you are weak with little energy, ache with swelling in the joints. It's not fair.
View Full Profile
Faye
Diagnosed at 32
You can live a productive life with lupus. The most important thing is to listen to your body, try to keep stress to a limit and live each day like it is golden. ...
View Full Profile
LUPUSBLESS
Diagnosed at 31
Lupus does NOT define me! I am NOT Lupus. I just have Lupus. Lupus is unpredictable, insidious, cruel at times, mysterious, AND has taught me many lessons in lif...
View Full Profile
Yvonne
Diagnosed at 40
I want others to know we have no control over how lupus is going to affect our bodies every day. It is wildly unpredictable. The 2 things that are predictable about...
View Full Profile
Sabrina
Diagnosed at 36
Lupus is a disorder where your immune system attacks its own tissues for unknown reasons, causing potential damage to internal and external organ systems.
View Full Profile
LiBernhard
Diagnosed at 46
I am sick and tired of people telling me I look fine so I must be having a good day. They have no idea how bad I hurt, how tired I am and how often I just have to ...
View Full Profile
Otter
Supporter
You can face each new challange knowing that one day a cure will be found many of us with Lupus can lead a full life
View Full Profile
CathyJ3
Diagnosed at 36
It affects everyone differently & not everyone looks sick. If a person with Lupus says that today is not a good day, just accept their word & don't push. I've had p...
View Full Profile
Ashley
Diagnosed at 24
I lost my first born son because of lupus. I was diagnosed while four months pregnant. Many women with lupus are advised not to get pregnant. Pregnancy can trigger ...
View Full Profile
Nicole
Diagnosed at 24
I want others to know that just because a person doesn't look sick or is smiling doesn't mean they are not in pain. I want people to understand how difficult each d...
View Full Profile
Regina
Diagnosed at 41
The main things I want others to know about lupus is that it may take years to get the final diagnosis. Please do not give up! Do your research and log all of your ...
View Full Profile
Vikkiglow
Diagnosed at 26
At age 26 I was diagnosed with Lupus. At 27 I was diagnosed with Lupus Nephritis. Although my kidneys were barely functioning I had no idea. I was a bit fatigued a...
View Full Profile
Miranda
Diagnosed at 13
Lupus, is not your common disease and it shouldn't be but Lupus is just as awful to us who have Lupus as it is for someone with Cancer. It's an awful disease, very ...
View Full Profile
Alexandria
Diagnosed at 20
With Lupus I am constantly dealing. Sometimes I can't think straight and have difficulty reading. Sometimes I can't get out the bed. Other times I'm so exhausted it...
View Full Profile
MissHeidi
Supporter
Lupus is a mystery to me because it attacks all of us in a different way. Each person is one a journey to find different answers and there is NO rule book!
View Full Profile
Jennifer
Diagnosed at 43
That even though you can't always see the sickness in me, I am really sick.
View Full Profile
BETTIEBOO
Diagnosed at 35
I am a 17 Lupus survivor, my daughter has Lupus and my aunt has Lupus. Lupus is a very cruel, crazy, unpredictable and livable disease. I have 2 total hip replaceme...
View Full Profile
jkost1942
Diagnosed at 14
Always pay attention to symptoms even if they are slight. The earlier they get checked out the better.
View Full Profile
JEN CLAY
Diagnosed at 37
I HAVE/HAD FAMILY MEMBERS WITH LUPUS AND I NEVER THOUGHT I WOULD BE LIVING WITH IT MYSELF. I WAS 1ST TOLD I MAY HAVE LUPUS AS A TEENAGER BUT I WAS NEVER REALLY SICK...
View Full Profile
Caitlin
Diagnosed at 12
lupus when someone hears about it they sbout really know what it is.Lupus is not contagious, and it impacts a lot of people
View Full Profile
BZ
Diagnosed at 22
Its not our choice to have this disease, but how we live with the diagnosis is our choice. There are good days and there are awful days - I sometimes wish I could l...
View Full Profile
Caitlin
Diagnosed at 12
i found out i had lupus when i was 13, i was scared. getting any tpye of disease can be scary. i was in and out of the hospitable all the time. i want everyone to k...
View Full Profile
Kari
Supporter
That Lupus is a big weight that is put on someones shoulders...it is a hard disease to hold onto in life.
View Full Profile
Terry
Diagnosed at 50
That if you are not seen by a doctor (preferably a rheumatologist and do not take your medication on a regular basis), lupus can cause severe damage to your kidneys...
View Full Profile
lupelupus
Supporter
I have Lupus and it has a big part of me. I hate it only because it consumes me! I want that to change.
View Full Profile
Sarah
Diagnosed at 24
I was diagnosed with Lupus of my intestine at age 24. I was in and out of the hospital for years. My symptoms consisted of having pain so excruciating I would be b...
View Full Profile
Susan Old
Diagnosed at 37
The difficulties are not visible.
View Full Profile
Elizabeth
Supporter
My daughter has lupus SLE disease and I watch her suffer with this disease every day. It strips away all normalcy from her life. The pain, fatigue, sensations/feeli...
View Full Profile
Melissa H
Supporter
Lupus is misunderstood and feared. We watch characters on tv in horror at the thought of being diagnosed with it. This disease can take a toll physically and mental...
View Full Profile
Yessi88
Diagnosed at 16
I just want people to understand not only the physical pain that people with Lupus deal with everyday, but also the emotional and mental strain it puts on a person ...
View Full Profile
Lety
Diagnosed at 23
Lupus has taken over my life. Along with Lupus I have RA and a clotting disorder. Summers are the worst for me I use to enjoy the sun, and now I have to protect mys...
View Full Profile
Taylor
Diagnosed at 13
Getting diagnosed with lupus nephritis changed my life, but it didn't put an end to it. Lupus took me by surprise, but if we raise awareness that doesn't have to ha...
View Full Profile
Joyce D
Diagnosed at 46
Living with lupus an everyday challege, I take one day at an time pray foranother . Life you have good days &bad so live to the fullest always stay positive.
View Full Profile
PooBear45
Diagnosed at 29
I want everyone to know that you can live a normal life with Lupus if you put God first in your life. One thing you MUST learn is that you have to learn your body i...
View Full Profile
Rose
Diagnosed at 38
Lupus is a devastating disease, it has cost me a family as I do not get periods hardly anymore and cannot get pregnant. Sometimes I cannot get out of bed, I cannot ...
View Full Profile
kendrarohn
Diagnosed at 11
it is tough to have and sometimes it is hard when you want to go out side.
View Full Profile
Amanda
Supporter
Lupus is not a death sentence, in fact for me it has been another source of motivation to speak out, speak up, and work harder than ever to achieve your goals in li...
View Full Profile
Kaitlyn
Supporter
Lupus is such a scary disease and I think that is something that most people do not realize. The future of a lupus patient is so uncertain and they are faced to liv...
View Full Profile
KRISTA Z
Diagnosed at 10
I am now 11 years old. Lupus does not care how old you are! Lupus does not care how bad it hurts and how it makes you feel...people need to know how it affects peop...
View Full Profile
Kyra
Diagnosed at 40
UV rays trigger flares of joints and organ inflammation. Sunlight can be avoided by UV Umbrellas and protective clothing (coolibar.com). Lately, florescent light...
View Full Profile
Papia
Diagnosed at 31
Lupus is a serious disease that effects many of us. It's important to raise awareness and educate people about this disease. It's a disease that may not be seen fro...
View Full Profile
Debbie
Diagnosed at 55
I may look OK, but I'm not. Please understand that I can't do everything that I used to. That when I say "no", I often would like to but now I know my limitations a...
View Full Profile
Monique
Supporter
That it's a serious disease and you have to take care of yourself inorder to live a healthy life.
View Full Profile
Miss Heidi
Diagnosed at 37
Lupus is sometimes invisible to the outside, but it wrecks you internally and emotionally. Every decsion from the time before your eyes open in the morning is prio...
View Full Profile
Lucy Lue
Diagnosed at 28
It is important to know that you can live with Lupus and although there is no cure you can fight the illness by changing the way you do things. Listen to your body...
View Full Profile
kendrarohn
Diagnosed at 11
it is hard some times even when you dont feel good.
View Full Profile
Miss Heidi
Diagnosed at 37
it is TOUGH to unerstand, take your time and know that you are not alone!
View Full Profile
Connie
Diagnosed at 34
We need the help of as many people as possible to help get the word out about Lupus so that others doesn't suffer in silence as I have done for the past eleven year...
View Full Profile
krista
Diagnosed at 19
Sometimes you may not be able to see the effects of lupus but it is very real.
View Full Profile
Alidawn924
Supporter
Lupus is a silent killer. Silent because so few people even know what it is, let alone what it can do to you. It is real, and we need to talk about it.
View Full Profile
Keewa
Diagnosed at 49
Lupus mimics so many other autoimmune diseases, that without a knowledgable, caring doctor, You WILL spend years mis dx, you will get medicines that harm instead of...
View Full Profile
7grandkids
Diagnosed at 50
You can surely live a wonderful life even though you have Lupus. I was diagnosed 11 years ago and with some knowledge I am living a wonderful life. I stay out of ...
View Full Profile
Lakesha35
Diagnosed at 24
We may look great on the outside but we have lots going on in the inside. We are not making up things when we say we are so tired and worn out. We really are. I dea...
View Full Profile
LKMartenso
Diagnosed at 40
My extreme sun sensitivity and subsequent rash from any sun exposure make me want to stay inside all the time during the most beautiful weather.
View Full Profile
Cristina
Diagnosed at 25
Lupus does not define me, but how I live and fight with Lupus DOES define me. You can lead a life of happiness, despite this chronic disease.
View Full Profile
valleygirl
Diagnosed at 36
I went to the Doctor for what I thought was rosacea, the dermatologist did a biopsy, it was not rosacea, but Lupus cutaneous, or on my face and chest. This is on m...
View Full Profile
Pam Boyd
Diagnosed at 31
Most Lupus patients do not look sick so its hard for others to realize that a person living with Lupus is sick. I don't think people realize how Lupus affects your...
View Full Profile
Vida
Diagnosed at 48
Living with lupus is a challenge, but it is also your inner most strength. I am thankful every day for the love and support of my family and friends. My favorite sa...
View Full Profile
ReneeGreen
Supporter
Lupus took my mothers life. She died at the young age of 22. I was only 2 years old. Lupus replaced my mother and each day I live with Lupus. I wish I could tra...
View Full Profile
Connie S
Diagnosed at 44
Stable, that is a good word for lupus. You don't get well, you get "stable". Fatigue is not a powerful enough word for what I feel. exercise will not cure me nor w...
View Full Profile
Annie Perr
Diagnosed at 27
When you detect any symtoms for Lupus or have question PLEASE see a doctor right away. It could save a lot of time.
View Full Profile
Patrice
Diagnosed at 33
In the begining I thought Lupus was surely a death sentence. I soon began to educate myself about lupus and other related deseases.It is important to find a treatme...
View Full Profile
Barbi
Supporter
People don't see lupus when they look at you, but you feel it every moment of every day.
View Full Profile
Roxanne
Diagnosed at 22
There is a support system, out there, for you. You're not alone.
View Full Profile
Lisa1223
Diagnosed at 45
Lupus was not easily detected for me, actually overlooked for at least 3 years,unfortunately. Be aware of your symptoms and persistant with your doctors to get the ...
View Full Profile
Rmittman9
Supporter
This disease is one that affects everyone so differently and that is one of the many reasons it is so difficult to teat. Sadly it doesn't just affect organs and bo...
View Full Profile
Jon
Diagnosed at 55
Lupus is also a man's illness--it is not a "woman's disease." Men with lupus-like symptoms should make sure their medical support team looks at all possiblities an...
View Full Profile
ahoneybea
Diagnosed at 59
Lups can affect your life and change it for the worse, if you let it happen. I was living with intense pain and did not even mention it to friends, family, or my do...
View Full Profile
Narbaby
Supporter
Help to stop this disease from being misdiagnosed.
View Full Profile
Luz E.
Diagnosed at 32
The world needs to be more educated about Lupus. So many people never even heard of the disease. The main thing is to show them that we (lupus patients) may look w...
View Full Profile
mrsm03
Diagnosed at 26
Sometimes you are just too tired. Sometimes you are so fatigued that all you can do is sleep. People with Lupus are not lazy and they need to rest during flare up...
View Full Profile
Chris
Diagnosed at 44
Lupus turns your dreams into nightmares, crushes your ambitions and slowly destroys you from the inside out. "But you don't look sick" is my phrase of the day EVERY...
View Full Profile
Jami
Supporter
Just because you can't see it on the outside, that does not mean that Lupus is not destroying us on the inside.
View Full Profile
lakb
Diagnosed at 20
lupus is known as the quiet disease...effects are not necessarily obvious, except to the person that has them. this is a both a blessing and a curse, depending on y...
View Full Profile
Debi Jones
Diagnosed at 22
Lupus is not contagious.It is a very frustrating disease.As it is sometimes very unpredicatble.My experience with living with this disease has been all consuming at...
View Full Profile
tinalynn
Diagnosed at 27
It took a few years before they diagnosed me with SLE and the secondary disease Sjogrens. SLE can affect any part of the body, but most often harms the heart, join...
View Full Profile
alisagrn
Diagnosed at 24
Lupus can affect any one at any age. My symptoms were over looked from age 9 until I was 24. Each doctor said I was to young to be in so much pain. This isn't a di...
View Full Profile
laylamurph
Diagnosed at 36
I want others to know that even though lupus isn't necessarily a death sentence, it is the equivalent to life in prison. I will spend the rest of my life trying to...
View Full Profile
Lanetta W
Diagnosed at 13
Lupus is a disease that seems invisible to the outside observer,however its effects can be very serious
View Full Profile
Vicky
Diagnosed at 19
Systemic Lupus is a terrible disease. You look fine and everyone thinks that there's nothing really wrong with you but you are suffering inside. You are tired all t...
View Full Profile
KarenT
Diagnosed at 25
That just because I don't look sick doesn't mean I am not sick! I have good days and bad days. I have days where I am good at the start of that day but by mid day I...
View Full Profile
Theresa
Diagnosed at 27
Diagnosis is difficult, but you have to fight to get an answer. If the first doctor doesn't seem to be listening, but you know something is wrong, keep pushing. Get...
View Full Profile
Liz Mejia
Diagnosed at 42
I was originally diagnosed with Discoid Lupus when I was 19 years old. I was told that Discoid Lupus never gets any worse, that I would never get the more serious ...
View Full Profile
SueCQ
Diagnosed at 44
I want people to know everything about lupus. That although one may seem healthy on the outside, inside they are suffering from disease that can destroy one's orga...
View Full Profile
susan
Diagnosed at 50
I want others to know that Lupus is a Chronic Disease. You have good days and bad days, but you will have it always...I have learned to live day by day, enjoying m...
View Full Profile
Maia
Diagnosed at 29
I'm not lazy. People say,"You look good". I may not look sick to others, but I'm struggling on the inside. Lupus is an invisible disease.
View Full Profile
Jayne
Diagnosed at 22
I want people to know the SLE is a debilatating disease and even though I may not LOOK sick, I am. That when people with lupus say they are tired, its not a normal ...
View Full Profile
Katie
Diagnosed at 19
It is a devastating illness to both the people who have it and to their friends and family. It is with you always. I know people that have been in remission for fiv...
View Full Profile
NancyLupus
Diagnosed at 47
the FATIGUE that robs your body and no matter how much sleep you get, you are still half asleep, the day progresses and your body starts to awake slowly, very frust...
View Full Profile
Annabel
Diagnosed at 16
It's very hard to diagnose. Know the symptoms to detect it early on.
View Full Profile

Return to All Profiles page

Pin It