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Lupus has many voices.  Add Your Voice »

Indiana

LFA, Indiana Chapter
(800) 948-8806

Ashley
Diagnosed at 24
Lupus is incurable. That is the hardest part to accept. It can be managed, but is sometimes very unpredictable. People with lupus have physical pain that interferes...
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Finecey
Diagnosed at 38
Lupus does not have a face. Not everyone has the same symptoms. I may look fine, but, that does not mean I am.
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Dawn
Diagnosed at 38
I was just diagnosed with lupus and I am scared to death. I have been living with diabetes for 8 years though so I know I will get through this too..
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Roberta
Diagnosed at 29
Lupus is a life altering illness that can stop you in your tracks at any given moment. My battle has been ongoing for 13 years, although it has been managed with me...
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Benji Kirk
Diagnosed at 30
there is a reason you feel lazy, but it's not your fault. lupus is a horribly painful, and extremely annoying disease. it prevents you from doing things you want,...
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Michelle12
Diagnosed at 22
Lupus does not define who you are. You are a being outside of this diagnosis who is capable of anything you set your mind to. You may have to adjust the way in whic...
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Tarina C
Diagnosed at 40
People who have Lupus are NOT lazy!It has been a terrible struggle for me living with lupus. Most people have no clue what it is or what it does to a person. Not o...
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Lollipop1
Diagnosed at 27
I fought the signs and symptoms of Lupus from an early age (13) & was told for years I was just depressed. I finally got results when I moved out of state. It runs ...
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Cindy
Diagnosed at 42
I was diagnosed with SLE in 2006. Since that time I have to give up my job in the school system. I have to monitored my cell count and ANA levels a lot. The pain mo...
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Connie She
Diagnosed at 42
Life changes with lupus. The adjustments can be overwhelming. Education is the key to living with the disease. Ignorance and fear are our worst enemies. Know yo...
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Angela
Supporter
I have just now been diagnosed ; but have had symptoms for 8 years. I have to go see a Rheumatologist next month. And I truly do not know what to expect.
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Kathleen
Diagnosed at 54
lupus is a disease that moves without voice.
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Tiffany T.
Diagnosed at 35
Lupus is a horrible disease. I went from "normal" to not knowing how I was going to feel the next moment. Now I'm trying to adjust to this new "normal".
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jeannie
Supporter
Lupus is a very painful disease,that i have lived with over 30 years and i am 43 now.It not only affects your organs but your nerves and other fital parts of your b...
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Karen
Diagnosed at 21
I have been living with lupus for 17 years. I feel I was blessed to be diagnosed in early stage. Uveitis is what started with me. I almost lost sight in left eye bu...
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GINA
Diagnosed at 23
I was diagnosed with lupus at age 23 in 1992,and the disease still remains a mistery.But you can live a productive life even when life throws you some ups and downs...
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Slw
Diagnosed at 46
Lupus is real and we need so much more research, treatments, diagnosis and most importantly a cure!
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Linzie
Supporter
The worst part of it is the exhaustion and the unending pain in my joints.We all look fine and people forget how easily we get tired. It has limited my life in myri...
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April
Diagnosed at 22
I had signs of this disease my entire life but did not know until the birth of my first son. I had issues after issues. I didnt get to have the full enjoyment of be...
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K Swonger
Diagnosed at 25
That a person with lupus can look fine to the average person but really be feeling miserable and very ill. Lupus effects everyone in the household, not just the per...
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Cara
Supporter
Quite simply... Lupus is awful.
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MARY
Supporter
MY LIKE TO NO MORE. AS MY SISTER HAD LUPUS.MY SISTER PAST AWAY.SHE WAS 48 YEAR OLD
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Wyatt
Supporter
I want others to know that it steals your family members energy, beauty and desire to move forward. It is a painful disease
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Teresa55
Diagnosed at 49
Lupus is a horrible debilitating disease! But you can have a life!
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Erica B.
Diagnosed at 26
Lupus has strengthened my voice of advocacy. I did not realize the true strength I had within until being diagnosed with lupus. It is a struggle to come to the real...
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Lindsey
Diagnosed at 14
This disease strikes out of no where. I have lost so much hair,and my body has changed a lot from my medications. I can be fine one minute,and annoyed the next. Thi...
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Lindsey
Diagnosed at 14
This disease strikes out of no where. I have lost much of my hair, and my body has changed a lot from my medications. I can be fine one minute, and moody the next. ...
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cmcarroll
Diagnosed at 39
Just because someone doesn't "look sick", doesn't mean they don't feel horrible. Having dark pigmented skin may not mean someone is "too sick to function or to do t...
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Sandy
Diagnosed at 39
Lupus changes your life in many ways. It is a continuous disease that has no cure. You need a great support system to get through your every day life. I live, hope,...
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ANNETTE
Diagnosed at 38
Lupus is a complicated disorder. Our immune system is not strong enough to fight off anything outside our bodies, instead. Our immune system attacks our vital or...
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StephanieH
Supporter
My Grandmother and Aunt both passed from Systemic Lupus. My mother is 5 years post diagnosis. I am being tested tomorrow. Every day is a struggle. One day I hope th...
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Pepper
Diagnosed at 27
That I have met more people today that know of Lupus, but they know nothing about Lupus. That people have heard of lupus, no of people that have lupus, or have fami...
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Fanta
Supporter
I been living with lupus for 7yrs now me and my best friend some days are hard I wake up in pain everyday but I keep on moving because I have God on my side I just ...
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Judy
Diagnosed at 24
Even though you may be diagnosed with lupus, you can still lead a healthy productive life. It's all about having good doctors, taking your medication as prescribed...
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Marcy
Supporter
I want people to know that they need to keep pushing their doctors for the right diagnosis. Lupus hides behind so many faces that it can take real persistence on th...
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Angie
Diagnosed at 40
Its a horrible.Its scary and everyday is a challenge
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barbara
Supporter
Lupus is never far from your mind, even though it might be minimized with medication. I am able to accomplish incredible things, but I need to pace myself appropri...
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pleasant
Diagnosed at 51
people do not understand that you are sick because they can't actually see something wrong with you
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Kenyatta
Diagnosed at 22
Just because I don't look sick doesn't mean I'm not. Everyday is different.
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Cares
Supporter
To read up on Lupus because if you find out you have Lupus it can be taken care of early and with medication. But Lupus you can die from and don't always listen to ...
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Melisa
Diagnosed at 34
Lupus IS an INVISIBLE disease that affects people in so many different ways! Unless you personally suffer with Lupus, you will NEVER know the reality of it all!
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CourtMarv
Diagnosed at 28
Lupus is a scary disease - people living with it need support and people in their life who care enough to recognize the disease and how it affects their loved one l...
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LisaMM09
Diagnosed at 19
It's so hard for people to understand what those of us with Lupus go through. I had to switch to prn with something I love because the combination of my job and Lup...
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Linda Kay
Supporter
Lupus is the most evil unwarranted disease I have ever heard of. It completely destroys the patient's quality of life. The moment they think they are well enough to...
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Tracie
Diagnosed at 34
That it is as serious as cancer and diabeties and that it should be spoken as loud as both as they are. Lupus makes you sick just as they do. Lupus also has no cure...
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Tasha
Supporter
Lupus is a very frustrating disease. There are about 1.5 million people living with it today. I am the only one in my family so far that has Lupus, but I know jus...
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Shellbell
Diagnosed at 10
I think the most important thing for others to know is that how you feel i.e., sick, is not always evident. Looking sick and being sick are not the same.
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TDMAK
Diagnosed at 43
Lupus is the type of disease that before diagnosed people thought you were "sapping" the so called good graces of others just for attention. Lupus has changed my l...
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OliviaAnne
Diagnosed at 14
Lupus is a scary disease that can affect any part of your body any time that it wants too. I like to call my body a mood ring! Because the more stress I have the mo...
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ethel
Diagnosed at 34
that just because i/we don't look sick and in pain, don't doubt us! everyday IS a struggle to do everyday things, that someone without Lupus could very easily do.
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Danielle W
Diagnosed at 25
Because I look fine doesn't mean I am. People don't understand what people like me living with Lupus deal with on a daily basis. The fatigue, the joint pain and the...
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Deanna S.
Diagnosed at 35
Lupus is a chronic, incurrable life threatening disease. It destroys lives and futures. I was diagnosed at 24/wks into my first and only pregnancy. I dreamed my en...
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ymckissack
Diagnosed at 35
Lupus is an unfair friend.Lupus does not follow the rules...Lupus knocks on the door all hours of the day and night,if you dont answer it will come in any way.Lupus...
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Angela D.
Diagnosed at 30
Eventhough I might not look sick, I am. I can't do things that normal people can do.
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barbarasu4
Diagnosed at 40
Living with Lupus is a difficult thing to do. You never know from one day to the next how you are going to feel. You can not make definate plans for anything becaus...
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Tanya
Supporter
Its hard to be chronically ill and not look sick. People dont understand
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Brenda
Diagnosed at 55
This is a disease that can be fatal. poeple may look normal, but may be doing everything they can to combact this.
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dani p
Diagnosed at 31
It is an illiness that you cant see. People and family may think you are doing better . Not so . When I think of lupus I think of the words yoou cant judge a book b...
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Charius
Supporter
Lupus affects everyone in very different yet similar ways. Each day is different so I would like to ask that people be kind, patient and considerate.
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Delana
Diagnosed at 29
I have Lupus, but it does not have me. It is a great mimicker and can take a long time to diagnose. There will always be bad days and good days. Learn to pace yo...
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Carolyn
Supporter
Several years ago I was exoperiencing several symptoms of what doctors thought may be lupus. However after many inconclusive tests and months of pain, inability to ...
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KimB
Supporter
Lupus is an all-encompassing disease that takes away so many things. In a weird way, it gives things as well. It strengthens resolve and determination as well as he...
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Hatgirl08
Supporter
Lupus causes joint pain and swelling, organ failure, canker sores, butterfly rashes, among a number of other problems. It can completely take away someones will to ...
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Bailey
Diagnosed at 20
Lupus is such a mysterious disease that many people know nothing about, so just simply educating the general public is what I want. It is not a "cookie cutter" illn...
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Manda
Diagnosed at 12
If I could have one wish (besides curing Lupus), I would wish that other people would understand that Lupus patient's don't always 'look sick.'
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JamieR.
Diagnosed at 36
365 characters isn't enough text. Lupus is a tough dx. it takes years to diagnosis.. too many people, especially doctors are uneducated about it. People often mista...
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LadyQ
Diagnosed at 24
Its a debilitating painful disease that compromises your entire life.
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llmoistner
Diagnosed at 14
Being diagnosed with lupus is life-altering. I feel blessed each and everyday to be in remission so I can work to help others trying to overcome the chronic illness...
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Amanda
Supporter
Because of Lupus, I have ALMOST lost one of the most important person in my life! Only because she is such a fighter and survivor she has been able to overcome maj...
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B. Leigh
Supporter
Our illness does not define us. We may be tired sometimes but we still like to have fun. We still love our families and friends but sometimes our bodies are under a...
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Paul's sis
Supporter
It is a disease that so many don't understand. Some people don't realize how serious and debilitating it is. More research and support are desperately needed.
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Jenn's BFF
Supporter
Lupus can strike at any time, regardless of your age or current health. Lupus patients may look healthy, but they aren't. Even if their lupus is in "remission," the...
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Cabubsmom
Diagnosed at 33
It's an invisible disease that makes you ache and makes you tired. I'm not lazy!
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