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Lupus has many voices.  Add Your Voice »

Iowa

LFA, Iowa Chapter
(515) 279-3048

Lindsey W.
Diagnosed at 20
Lupus is not merciful...and the individuals that battle it silently, quietly and with grace every day deserve to have this cruel mystery solved.
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april cole
Diagnosed at 23
Lupus can run in families, and research suggests that genes are involved in the development of lupus. However, lupus also can develop in people with no family histo...
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Pamatha
Diagnosed at 38
Remember that flu bug you had that made your joints hurt so bad you did nothing but sleep? The only movement you made was to go to the bathroom and you had to talk ...
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Nicole F
Diagnosed at 27
Lupus masks itself as other illnesses or problems. Mine started with gastrointestional problems which then turned into joint pain. I looked fine but I knew somethin...
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Arlene Sko
Diagnosed at 27
Lupus is not understood by people who don't have it or know what it is. You may look great on the outside, but feel lousy inside. Somedays are good and others painf...
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jean59
Diagnosed at 45
To just understand that when we say NO, it is for a reason. Lupus affects us all so differently. I am in a flare right now and can't get the Des Moines doc's to un...
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Tonya
Diagnosed at 29
Don’t give up always get second/third/fourth opinions. We are not crazy, we ARE sick. I have fought for a number of years to know why I hurt, why I don't feel good ...
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Joy
Supporter
Lupus is a disease that few doctors understand. You have to become your own expert. Learn Mindfulness techniques,read good books on Lupus and use support networks f...
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Becka C.
Diagnosed at 36
Most people assume those of us with Lupus need immune system boosters. With Lupus our immune systems are on overdrive, they are so active that they attack our own t...
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Pam S.
Diagnosed at 26
1-u could have had it for years before being dx'ed. 2-no 2 people are EVER alike that have Lupus! 3-ALWAYS, ALWAYS, ALWAYS stay "POSITIVE", "POSITIVE", "POSITIVE"...
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Tara
Diagnosed at 29
Lupus is very complicated! No one lupus patient is the same, but it sure does help to hear the voices of others that experience what you do.
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Kylee
Supporter
I want people to know that it does effect you life, it isen't easy to live with.
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Kristen
Diagnosed at 36
That this disease needs attention..more than it gets now. That people need to be understanding and not make jokes. Just cause we look ok, doesn't mean we are ok.
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Kylee
Supporter
I sucks to live with. It's hard on you and your family.
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Shari
Supporter
I wish more people understood what Lupus is and how it does impact people. I know it is difficult to explain an illness that doesn't have any visible signs.
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Hannah
Diagnosed at 15
Lupus is not a small issue. It does kill, and it takes away people's quality of life. This disease sneaks up on you because a lot of patients do not have a relative...
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Daenna
Diagnosed at 47
When you have Lupus you constantly wait for the other shoe to drop. Our immune system becomes our enemy. Lupus is an enemy that other people can't readily see. We n...
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gioimod
Diagnosed at 13
Lupus has changed my life but I will not give in to it!
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NathanL
Supporter
This disease is cruel, it is constantly nagging your body, and making you miserable. But it also made me realize I needed to stop drifting through life, and having ...
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Melissa
Diagnosed at 40
Diagnosed at age 40 after being “misdiagnosed” for around 15 years.
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Gina
Diagnosed at 35
Someone you know has Lupus and they may or may not know it yet. It's a sneaky disease that not only hurts your body but you spirit and your loved ones. It's hard fo...
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Cathy L
Diagnosed at 32
My favorite quote from a fellow Lupus patient, "I am NOT depressed, I am in pain." So few people understand that Lupus has no one symptom, no one medicine, that ou...
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Elesha
Supporter
An estimated 1.5 million Americans have lupus, likely someone you know has lupus.
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teresa6360
Diagnosed at 46
Lupus is the enemy that no one can see. Lupus patients have a variety of issues that people can see, the exhaustion, the fevers, the rashes, the attacking of our vi...
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