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Lupus has many voices.  Add Your Voice »

Kansas

LFA, Kansas Chapter
(316) 262-6180

LFA, Heartland Chapter
(314) 644-2222

Christy
Diagnosed at 43
I went to doctor after doctor complaining of joint pain, horrible fatigue, and other things for a decade. I was told it was all in my head by one. I knew it wasn't...
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Danielle
Diagnosed at 15
I was diagnosed with SLE at 15 years old. Up until then I had lived a very normal life. Throughout my twelve years with this disease I have had many ups and downs...
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Lorene Woo
Diagnosed at 40
I was diagnosis 5years ago. This year I've decided to celebrate my Lupus instead of hiding from it. So I've been telling everyone including my work that I have Lupu...
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Julie
Diagnosed at 28
Lupus is a serious, sometimes life threatening disease and needs to be addressed as such. Be proactive with your care, as no one fully understands how you feel exce...
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MALINDA
Diagnosed at 40
its real it is the one thing i look at like a cancer but no cure so many meds and everyone is so diffrent, i can not take alot of pain meds im allerg...
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America
Diagnosed at 35
Just because it can not be seen does not mean it does not exist! There are days that I just don't want to do anything but feel guilty because I don't 'look' sick. T...
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Rachel
Diagnosed at 36
If anyone in your family has Lupus please go be tested for it. My aunt and Great Uncle have it and my Great Uncle died because it affected his kidneys. My aunt ha...
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Diana
Diagnosed at 23
This is a chronic illness but it doesn't have to be fatal. I wear a 100 sunscreen all the time. Lupus makes even "easy" tasks hard. You never know when life is g...
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Carolyn
Diagnosed at 30
I want to spend time with you and be the person I used to be but I can't. I physically can not do it. It hurts and not just physically, the physical pain and fatigu...
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NurseNana5
Diagnosed at 58
Lupus changes lives drastically even if "you don't look sick" because we are really sick. You can't see what damage an autoimmune disorder does where the body attac...
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Donna
Diagnosed at 36
Because I/We look fine does not mean I am/we are not sick or in pain.Lupus is a chronic, incurable life threatening disease. It destroys lives and futures. Every da...
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Chloe
Diagnosed at 15
Lupus is a very unknown disease. It affects everyone in different ways. Band Together to FINDACURE
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Lydia
Supporter
My biggest pieces of advise for anyone living with Lupus are: Find a doctor you are comfortable with and love; Don't be afraid to ask for help; Remember to take car...
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Lisa
Supporter
Lupus is very real. From what I have seen not much is being done to help those suffering from this dreadfull disease. I believe that unless more is done more people...
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Amy
Supporter
I would like others to know the to know the life-threatening effects of lupus. Lupus is a real disease, but most people know little about it. While you can't tell i...
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Lisa
Supporter
I would like the world to know that Lupus is very real. That there are alot of people who suffer from this awful disease. Just because someone doesnt look sick does...
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Charlene
Diagnosed at 40
Most people do not understand the pain people with lupus go through. They think because this person looks healthy the must be healthy. With awareness we can change ...
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Megan
Diagnosed at 27
Support from others is crucial when living with lupus. I do not know what I would have done if I did not have my family, close friends, and colleagues there to sup...
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Nicole P
Diagnosed at 31
There are the daily symptoms I can count on-pain/fatigue/headaches. There are the daily surprise symptoms of randomly changing ailments- stomach pain/infections/ful...
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Bevans
Supporter
My daughter, Tatum Bevans, died April 7 2010 from complications associated with Lupus. She was 30 years old and left behind her husband and three beautiful daughte...
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Angie Diel
Diagnosed at 8
I may not look sick but I hide the pain well.
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Jimmy
Diagnosed at 40
There are many subtle signs that can be actual tell, tell signs of Lupus such as rashes and muscle pain and joint pain. Don't let those signs and symptoms that come...
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Melissa
Diagnosed at 27
Lupus is not a death sentence! This is the most important thing to remember. After being diagnosed it may feel like the world is caving in, but surround yourself wi...
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mickey1369
Diagnosed at 24
it can be very hard to accept that you have it. you might want to pretend that you're fine because to the rest of the world you can look that way, but you're not. t...
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Billie
Diagnosed at 28
I would like others to know exactly what Lupus is so maybe the can understand just what those of us with Lupus go through every day!Lupus can be such an "invisible"...
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ZanesMom
Diagnosed at 25
I asked my 6 1/2 year old son what he wanted others to know about lupus, as I wanted his point-of-view. This is what he said: "It hurts." I want others to know th...
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Wendy
Diagnosed at 29
Be patient but not passive. Take an active roll in your diagnosis/treatment. Educate yourself as much as possible so that you are able to better understand what i...
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