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Lupus has many voices.  Add Your Voice »

Louisiana

Lupus Foundation of America, Inc.
(888) 385-8787

Nanette
Supporter
With all the ice bucket pictures to support ALS. I would like to know why as a patient why cant we bring out in public like ALS. We need more movies, advertisement...
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Bernice
Diagnosed at 35
Lupus changes one's life forever. You never live a day that Lupus does not plays some part in who you are and what you do with your life in the past, present and fu...
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Rachel wil
Diagnosed at 42
I was just diag with lupus couple days ago , after test and test they finally figure it out I had lupus and I have been battling for 2 years and also battling stero...
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Melli
Diagnosed at 51
I am new to this, and still learning about the disease. What I want others to know is that you have to find out if you have this disease or not,and if you do ,then ...
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John
Diagnosed at 43
Iam a 45 year old man that was diagnosed with systemic lupus 2 years ago. My doctor did not think I would make it. I am in rescission right now, but I know that it ...
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Tabitha
Diagnosed at 23
I want people to know that lupus is both physically and mentally painful. Lupus affects every aspect of your life. Lupus affects who you are, it is a factor in ever...
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Jackie
Diagnosed at 19
I have been living with Lupus for 20+ years. At times, I have been very critical (near death). Because of those circumstances, I am now handicapped. However, I have...
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Nessa
Diagnosed at 28
Lupus is an unpredictable and life-altering disease. I am suffering from the side of effects of long-term steroid use (prednisone) now in brittle bones. 2 years a...
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rongal20
Diagnosed at 37
Lupus is an expensive damn disease...messes with my joints, skin, hair, daily activities, etc...sad i can't enjoy the sun without a reaction...can't enjoy a perfect...
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Sharyn
Diagnosed at 32
Lupus can strip us of our lives, even if it doesn't kill us. I am so photosensitive, I cannot tolerate any sunlight, even with sunscreen, which means missing out on...
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Danelle
Diagnosed at 40
Lupus effects the entire family. Flare ups can and do happen whenever, wherever, without regard to life's plans.
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LisaMaye
Diagnosed at 41
I would like others to know that Living with Lupus is a big challenge...people with lupus may have different issuses cause there are different types of lupus.Lupus ...
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Ashley
Supporter
Lupus is not a game.Lupus is a very painful disease ,that attack the joint,skin & sometimes cause hair loss.I been living with Lupus since i was 15yrs.
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Rene
Diagnosed at 48
I have SLE Lupus it has affect my muscle in both upper arms I have purleish rash on my legs and foot, Raynaud, first stage Renal failure. I have lots of pain at ti...
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LaQuandra
Diagnosed at 22
Lupus is real and it affects millions of people everyday. I am one of the many, but be of good cheer; this is the beginning of a battle in which we will be victorio...
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juli wimbi
Diagnosed at 15
lupus is hard to live with but not impossablie
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Kasey
Supporter
One day I was in so much pain I couldn't move. I was living w/my son. I rushed to call mom. Went to the Dr they ran all kinds of test. I'm waiting on the Dr return ...
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Melissa
Diagnosed at 31
Lupus is very painful . Every day I wake up tired and in lots of pain. Pain so bad it hurts to move every part of my body.
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MsLi
Diagnosed at 26
Educate yourself on it don't wait until you or a love one have it!!!!!
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Molly
Diagnosed at 37
Lupus affects me in so many different ways and I never know when it will flare up. I've learned to hide the rash and sores, but I can't hide the pain. Thank God for...
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Tabitha
Diagnosed at 24
Lupus is a real disease, but most people know little about it. You can't tell if someone has lupus by looking at them, the pain and suffering is still very real. Lu...
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robin
Diagnosed at 38
THERE IS NO CURE, VERY LITTLE MEDICATION HELP, AND CAN BE VERY DEBILITATING. THERE ARE MORE BAD DAYS THAN GOOD.
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Amanda Jo
Diagnosed at 32
Oh there is so much, but mostly that it is a devastating and debilitating disease to so many people. You may not see the pain we are in on the outside but it is sti...
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A.lovejoy
Diagnosed at 16
I look likeI feel fine. But this smile and the proper apparel hide a llot. I am covered in rashes from head to toe. My hair, thank god it grew back, because it all ...
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Sway
Diagnosed at 42
How painful and misunderstood Lupus is
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Harmony
Diagnosed at 32
Lupus is a significant public health issue that requires national attention and action now!
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blinda
Diagnosed at 45
We r not hypondriacs, the pain is excruciating, the ulcers in the mouth...I could go on but I wish fMILY AND FRIENDS undertsood and not critisize.
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CristinaR
Supporter
Lupus is REAL. Just because you can't SEE anything wrong with someone who has SLE doesn't mean that they're ok.
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SarahAnita
Diagnosed at 19
Lupus can affect your mental status. You can have memory loss, delusions, black outs, etc. Notice the little moments of confusion and talk to your doctor immediatel...
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Jennie
Diagnosed at 20
My Lupus does not define me.
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Brenda
Supporter
Lupus does not have me I have Lupus. You have to let God lead and guide you in your dfaily walk of life. Pray and thank God daily.
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bneathery
Supporter
Don't ever give up. The more active I am the better I feel.
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Ronda
Diagnosed at 13
Lupus is a silent disease. Just because you can't SEE it doesn't mean that it doesn't exist. This chronic illness is a battle. A constant struggle to stay afloat...
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melissa
Supporter
Living with Lupus is a daily struggle..for me, that is. Sometimes Lupus sneaks in without you even knowing, as you may have otherwise thought you were dealing with ...
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Aunt Sam
Supporter
While you may have to change your lifestyle somewhat and slow down a lot, Lupus is managable. I have SEL.
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Lisa Amos
Supporter
Everyone with lupus has a different experience. No one—not even your doctor—can tell you what will happen. In some people, lupus can make it hard to think clearly o...
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susan
Supporter
there is no cure. treatments are a guessing game. we need more research desperately.
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Samantha
Diagnosed at 31
It's a daily struggle just to function. Support is the the greastest gift you can give.
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AnnS
Supporter
My daughter has struggled with lupus since she was a teenager but was only diagnosed at 26, only after a placental abruption, and many many Doctor's later. It was ...
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GingerS
Supporter
I saw my teenage daughter struggle with abnormal illnesses and pains and the quest began in trying to find someone to help her and figure out what was wrong with he...
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shelby
Diagnosed at 15
i am 27 now i was diagnosed with Lupus after my 15th birthday. Lupus has affected all of my joints first Doctors thought i had J.R.A. after much testing and visits ...
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Yvette Ale
Diagnosed at 34
Lupus is not a new nor rare disease; in fact millions of people around the world have it.
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Phoebe
Diagnosed at 28
Lupus sucks!!
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b-michelle
Supporter
A disease that gets overlooked by many and i hope a cure will be found soon:)
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Nick
Supporter
It is currently a disease without a cure. It is such an unnoticed diagnosis that many do not realize how devastating it can be.
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WSEIDL
Supporter
Is an invisible disease.
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NOLAGURL
Diagnosed at 25
It is very serious....Do the research....support others...
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Sherry
Supporter
Lupus patients require a great support system to live with this disease. Rest, support, and medical attention all play a part to survival.
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Katherine
Diagnosed at 50
They need to ask their Doctor to check for Lupus. My two doctors has me doing blood work every 4 months. I ask my previous doctor to check for Lupus and she told me...
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Glam
Diagnosed at 29
I was diagnosed in November 2008 Lupus SLE
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BethAnne
Diagnosed at 38
It's not contagious & not all the symptoms are visible for some people.
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Leighann
Diagnosed at 24
Just because I "look" ok does NOT mean I am.
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Sherry
Diagnosed at 43
Lupus has change my life in more ways than I would have every thought.....
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