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Maryland

LFA, DC/MD/VA Chapter
(202) 349-1167

Mariluz Go
Supporter
Maintaining a healthy lifestyle, good nutrition, and being surrounded by positive and supportive people will help you live longer and will minimize the stress in yo...
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Teri
Diagnosed at 53
It took 10 miserable,confusing & exhausting yrs before I was finally diagnosed with SLE/Sjogrens. And I am a (now disabled) nurse practitioner! I was treated by the...
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DB
Diagnosed at 54
It is important to have someone close to you understand the crazy changes, pains, and problems that seem to change every day. Also,it is important to push yourself ...
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Arnetta
Diagnosed at 52
I have been living with Lupus now for 3 years, many days I tried to ignored the pain. But, in really I know now that it real because of the pain and the fatigue.I w...
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Yah Sackor
Diagnosed at 26
LUPUS is a real and dangerous disease. LUPUS can change you and your love ones life for ever.
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JamieMarie
Diagnosed at 28
Lupus is easy for people to not think about...if they don't have it. But when you do, it's impossible to forget. Yes, we may look just like you on the outside, prom...
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wana
Supporter
I don't know where to begin. But I wana say I have what they call overlap syndrome.(lupus, rhematoid arthritis, and polyomilsitis) my spelling is off. It's a ever...
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caitlin
Diagnosed at 11
I want people everyone all over the world to know that there is hope! There are so many resources to help get you and your family through this disease. With these r...
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Pauline
Diagnosed at 49
I would others to know that although lupus sufferers sometimes don't look ill but are more often than not, in lots of pain and discomfort.
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debbie
Supporter
find out what your symptoms are and don"t let the doctors try and brush it off and tell you it is other things. There are doctors who aren"t diagonising this condit...
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Sakina
Diagnosed at 31
Educate yourself about Lupus and know your body. If you think you have symptoms go and get it checked out. I had symptoms for 6 years, but I went to a ton of docto...
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TahirahL
Diagnosed at 20
Lupus is an autoimmune disease that has been around for a while. It's been very hard to diagnosed over the years along with the treatment. It mimics many other dis...
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Angela
Diagnosed at 16
I've had Lupus for 16 years. I have it in my lungs and my mother has the lupus on her skin. It is not fun to have it. My body hurts, also chest pains, and I am tire...
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Olipopsmom
Diagnosed at 22
I was diagnosed with lupus during my first son's pregnancy. I developed lupus induced preeclampsia and delivered my baby 8 weeks early at 2 pounds 14 ounces. My lit...
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Lorena
Supporter
Lupus has affected my family for three generations. My grandmother, mother and I are living with Lupus. (my grandmother in spirit). Although Lupus has created much ...
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Hilary R
Diagnosed at 28
Lupus can be an underlying factor, DRs don't check until you force them. Don't put it off, if you think you have it. Get tested.
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Carla Kemp
Diagnosed at 42
2 years of specialists and no answer as my left foot turned blacked and I could not wear shoes. I finally collapsed and Georgetown Hospital saved my life. 3 blood...
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Melissa
Diagnosed at 31
Sometimes the symptoms of Lupus seem like not a big deal, but mention them to the doctor bacause it might mean more than you think.
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Larea
Supporter
in 2010 I was diagnosed with lupus, the cruel mystery disease. Lupus is a autoimmune disease that attacks the skin, joints, and organs. It is not terminal or contag...
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Nancy
Diagnosed at 45
Once initially diagnosed and controlled with medication, the disease does not slow me down or change my busy lifestyle. I try to be as healthy as I can and get plen...
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Neikita
Diagnosed at 18
Lupus affects everyone, not just the person diagnosed. It's important for people to get educated.
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latasha pa
Diagnosed at 21
that people need to know the signs and sympothoms of this disease. it affect millions in a year
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Kathleen
Diagnosed at 27
Lupus is a life altering illness. There are numerous medications designed to help patients with lupus, but unfortunately, there is no cure. Lupus is often misdiagn...
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Laolu Faye
Diagnosed at 24
Something I have come to appreciate is that men also get lupus, and that it is hard explaining to people that although I look ok most normal activities that I perfo...
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Ingrid
Diagnosed at 27
Not many people know what Lupus is and how it affects your body. Its a hard illness to live with. You never know when you can have a flare up and it affects your fa...
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Survivor
Diagnosed at 20
This disease can be very unknown because you never know what you going to get you can go for months with out a flare up and boom it hit you out of no where. I would...
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LinnetVC
Diagnosed at 30
Lupus is a chronic disease. There are treatments to help cope, but there is no cure at this time.
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Sue
Diagnosed at 41
Many people don't understand that the tiredness that comes with Lupus is not laziness but an inability to function. We WANT to do things that everyone else does bu...
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Megsmom
Diagnosed at 24
An estimated 1.5 million Americans suffer from lupus, making lupus more common than leukemia, muscular dystrophy, cerebral palsy, multiple sclerosis and cystic fibr...
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Barbara
Diagnosed at 49
If you believe you have symptoms - read everything you can and be informed. Report your suspicions to your doctor and ask to be tested\diagnosed. After several ye...
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Jackie
Diagnosed at 12
I constantly have people asking me, "What is lupus?" And so I tell them it's a life changing disease. I explain to them how my body is affected by lupus and most of...
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Zelda R.
Supporter
Lupus is a disease that attacks your body! But by the Grace of God there is still Hope of Living a normal life!
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Lorena Lue
Diagnosed at 18
How I got better... I decided to live my life, and not let test results or doctor’s opinions rule my feelings and shatter my faith or hopes. I decided to learn h...
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Danella A.
Supporter
Lupus does not have to stop you from living! Find your strength and hold on to it!
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KRSProf
Diagnosed at 14
Living with Lupus is tough, but you can still have a fabulous life.
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Nee
Diagnosed at 32
Lupus is such an unknown disease and we must band together to inform everyone of its seriousness. People hear LUPUS and never know exactley how deadly of a disease ...
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Viviana
Diagnosed at 26
It will never go away, it will try to bring you down in every way possible, you may feel weak, tired, an in pain most of the time, but if you challenge yourself and...
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Kim
Supporter
Lupus is a disease which robs people of their lives. It is unfair, but by banding together to raise awareness of lupus we can win the war against lupus.
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Kinyah
Diagnosed at 26
Lupus can be a disease that can truly overwhelm you if you allow it to. But with a positive mindset, educating yourself about the disease, excersize and the right ...
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ND
Diagnosed at 50
When you Lupus you can look perfectly healthy and feel healthy most days. Then you can go to bed one night and wake up the next day very sick and very tired. It h...
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Jenn H.
Diagnosed at 29
Just because I have a smile on my face and I do not look sick does not mean that I am not exhausted or in pain. There are days that it takes everything in me just t...
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breenahope
Diagnosed at 32
Being told I was being diagnosed with Lupus was the hardest day of my life. My mother had passed away at the age of 41 from complications from Lupus. She had a st...
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JAIMI
Diagnosed at 32
Lupus is a debilitating and painful experience. Living with lupus can change your life in an instant, waking up stiff with sore joints to losing your hair and being...
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AlishaL
Supporter
Lupus is a serious, complex disease which unfortunately, not a lot of people are familiar with. This disease has the potential to affect any and anyone regardless o...
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Natalie
Diagnosed at 21
Lupus is a deceitful disease, the "look good, feel bad" type of disease for some. It affects every person differently and it can happen to ANYONE of any race, gende...
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Irene
Supporter
LUPUS IS SERIOUS AND NEEDS TO BE ATTENDED TO
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Gina Boyd
Supporter
I want people to understand that there is Life with Lupus. I want people to know that having this does disease does not have to define you or the rest of your life....
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Julie
Diagnosed at 14
We had heard of Lupus before our daughter was diagnosed, but knew very little about it. After researching for a few months, we understand why it needs more support...
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Davida
Diagnosed at 29
I want everyone to know that Lupus exists. It is a chronic illness that must be taken seriously. Lupus mimics other diseases and conditions which make it hard for...
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LupusLivin
Supporter
Lupus is a very quiet disease and people need to know more about it. Having Lupus is not an easy thing to have and limits alot of things a person with Lupus can do ...
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Sharon Dav
Diagnosed at 26
Even though Lupus can be mind devastating, you cannot let this chronic illness take control of your life. It will make you feel useless. But with the correct medica...
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Timetha
Diagnosed at 30
I may not look sick but I am and I really need your support, love and understanding. Lupus does not always show visible signs but I am really tired and not just laz...
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Vonda
Diagnosed at 41
I was diagnosed with lupus at age 41 but I have been suffering with lupus on and off since I was 21 years old but the doctor's didn't know what was wrong with me. O...
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lupuslinda
Diagnosed at 52
Lupus doesn't just attack an individual; it affects a family. The person with lupus not only suffers from the disease, but also has to watch it affect her loved one...
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Smythe
Supporter
Lupus affects your life and changes it forever. Some of how it changes can be for the better--more time to rest and read, for example, but some ways are frustratin...
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bets
Diagnosed at 61
I was told I had Lupus in 1978 and my baby was only two years old and my son was 5, and I was so scard I was going to die and leave my babies, but God brought me th...
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DCantey
Diagnosed at 19
Lupus is a terrible disease but with it you can live a full & rewarding life!!
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mdflymom
Diagnosed at 34
Lupus does not have to be the end of your life.
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Stephie1
Supporter
Lupus affects every part of your life; your family, your relationships and your job. As long as Lupus has been around, it still amazes me that the awareness level i...
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Stefan L M
Supporter
Lupus is not a death sentence it is a rebirth for educating yourself and making your mind,body,and soul stronger ...Lupus can't have you...you have Lupus ....fight ...
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JoA Butler
Diagnosed at 40
That we are fighting a silent killer. It takes your energy, your intelligents, your ability to work and your family life. There is no magic medicines or treatme...
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Persha
Diagnosed at 24
Being able to overcome lupus has a lot to do with your perspective. Try not to focus so much on the pain and restrictions of lupus, but more so on what's good in yo...
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Rachael
Diagnosed at 16
I didnt think that I could ever walk again but I walk around everyday like everyone else. I just carry an umbrella now or wear a big hat! :)
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Sharon Hul
Diagnosed at 19
Lupus ain't for sissies!
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Karen Cameron
Supporter
It took @ 5 years to be diagnosed with lupus. I experienced fevers swollen lymph nodes and fatigue. I was mis-diagnosed with Hodgkins disease,rheumatoid arthritis,a...
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Laniharmon
Diagnosed at 24
Someone you know has lupus. Just because they may look healthy and put up a strong front, doesn't mean everyday isn't it's own struggle.
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Danielle
Diagnosed at 13
That you can lead a full life, you just have to make adjustments.
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Linda
Supporter
lupus is a difficult disease to treat
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