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Massachusetts

Lupus Foundation of America, Inc.
(888) 385-8787

Robin
Diagnosed at 19
I was diagnosed at 19- my whole life was ahead of me. Luckily, I was able to accept lupus as part of my life early on. I think that helped me get through the toug...
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BILDAD2014
Supporter
Black and Hispanic/Latina women tend to develop symptoms at an earlier age than other women. African Americans have more severe organ problems, especially with thei...
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Alie
Diagnosed at 20
I was diagnosed with Lupus right after I turned 20 in 2011. It completely stopped my life in it's tracks. It has made it very difficult to be an average adult in th...
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Mia
Diagnosed at 33
I want you to know that lupus took my life away from me at 33. But I'm in cognitive behavioral therapy now and I'm trying to say things positively these days. I was...
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Kathy L.
Diagnosed at 35
Lupus is a cruel, unpredictable and painful disease. It robs you of your plans for the future and challenges you on a daily basis. I have lived with this disease fo...
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Ruthy
Diagnosed at 29
I used to think that Lupus wasn't a real disease until I had to experience it for myself ! I never really understood how devastating, how emotionally draining and ...
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Joanne613
Diagnosed at 37
I want others to know that Lupus is real. It affects your personal life and all aspects of your life. The person you were once upon time you cannot be anymore. I...
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Pamela
Diagnosed at 38
Lupus challenges you in so many ways: physically, mentally, spiritually, and socially to name a few. It does not have to own you though. My lupus has made me more a...
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Bev G.
Diagnosed at 26
Though lupus is indeed scurrulous, many of my friends and I are surviving with s.l.e.. I was diagnosed forty years ago and have many additional disorders resultant ...
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Rosemarie
Diagnosed at 49
Lupus Information/Awareness talks about how most people can go on to lead a normal life. When in actuality, the norm is that very few are fortunate enough to be abl...
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Peg Doukas
Supporter
I have always been an active person, so reading & writing was not my favorite activity. My ability to use "perfect, most affective" words, can not describe the hor...
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Lori
Supporter
It is an extremely odd disease, as you already know, which causes anxiety and depression, because you can not plan your future. It ruins your plans often, because y...
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Felicia M
Diagnosed at 31
I have skin lupus. and its soo hard. My face is the main spot affected. People stare at me, I even had a customer write on a blog about my company, that the woman (...
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C WADE JR
Supporter
Lupus can be beat with with right the fighting attitude, positive and upbeat support system and heaping dose of faith. There is not a cure for Lupus (at this presen...
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Peg
Diagnosed at 46
It is a very sad illness & it is difficult to have a support group if u do not have family close by. It changes u in ways words can not describe. It also opens up...
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Vicki
Diagnosed at 41
I want everyone to know that Lupus affects each person differently and that no matter how it affects you, it is just as serious as how it affects the next person.
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Myleisha
Diagnosed at 6
Well lupus can be hard sometimes to handle, especially if you are living with it for quite sometime like me which I'm 19 right now so you can imagine how that is fo...
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Emilia
Diagnosed at 21
The pain exists, the worry persists, and the pills will never vanish from your kitchen table as reminder for you to take them both day and night; but never allow it...
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Tina
Diagnosed at 29
That the pain, tiredness and sadness is real, but you will find the more you love yourself and take care of yourself you will be able to deal with and overcome thos...
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Corinne
Diagnosed at 25
To know that although difficult to have children it is possible!
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Angelbaby2
Diagnosed at 22
I want people to know that Lupus is not contagious and that it is not hereditary. Its something that is in your genes that you are born with. Lupus can be hard to ...
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David
Supporter
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rflint93
Supporter
Having lupus means needing to pay close attention to every little thing your body tells you. When fatigue takes over, sleep is the only option. Ignoring signals mea...
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Heather
Diagnosed at 20
Optimism is wonderful, but sometimes we just need someone to be scared with us.
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Melissa
Diagnosed at 36
The most difficult thing for me is to accept that my activities and engagement levels are curtailed, not because of my lack of dedication or interest, but because I...
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ricecrispy
Diagnosed at 29
Lupus is a diseaes that most people do not know anything about. Some people believe that one is not actual sick and hurting. People need to know that even though it...
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VeraLeigh
Diagnosed at 19
Lupus is a auto-immune disease, it is not contagious and it can mimic other disorders and diseases. The symptoms can range.The flares of lupus can be mild or severe...
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Jenetta
Diagnosed at 23
Lupus is very complicated and at the same time very predictable. Get to know how your disease speaks to you so that you know how to address it. No two Lupus disease...
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anabel
Supporter
Lupus is a illness that you need to use your mind a lot you need to meditate eat healthy and stretch out a lot and you learn to have patience!!!Enjoy all your good ...
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Chrissy
Diagnosed at 34
I want others to know how challenging this disease is. We may look fine on the outside but on the inside it's a different story. It's a roller coaster ride. To tho...
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Dilip Shah
Supporter
Lupus is curable disease if diagnosed at the early stage. So please go for proper check up if you have symptoms of LUPUS.
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Pearl L Ri
Diagnosed at 50
Keep Dr appointments. review medications with your rheumatologist to report side effects. Most of all keep a positive mind and atitude.
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Maureen
Diagnosed at 48
It's a never ending battle - just don't know from day to day what will happen next - I handle it by living every day like it is a new adventure
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Sue Saco
Diagnosed at 32
I won't let Lupus take everything from me.
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Lynn Marie
Supporter
it is a master of disguise -10 years of Doctors and tests to get a diagnosis.6 Years of non stop pain until pain management allowed.All you can do really is connect...
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Mel
Diagnosed at 24
Lupus is something that I cannot describe in a few words but it does shape my day to day activities. However, I try not to let it define me.
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Rebekah
Diagnosed at 15
Lupus symptoms are all over the place. Depression is a symptom, not a side effect. If you know someone with lupus closely, do your research. Be empathetic and under...
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Alexia
Diagnosed at 33
Don't give up hope. Find out what causes flareups whether food, diet related, or weather related. If a doctor doesn't hold out hope switch doc's. Live every day w...
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betty
Diagnosed at 67
You never know when it's going to hit,very painful, even hurts in your insides .
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Solange
Diagnosed at 16
NO two cases of Lupus are the same. There are many similarities, but no experience is the exact same. This is an illness that is not obvious until you are at your v...
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WMA-belle
Diagnosed at 41
Lupus requires hope, support and lots of patience. It's a humbling disease and I never know what to expect. But I now celebrate ever day that I wake-up, walk down t...
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Shauna Bak
Diagnosed at 40
Lupus is a disease that is very difficult to describe to those who ask. You look fine on the outside but inside there is always a storm brewing. Most down play th...
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Lacy Ann
Diagnosed at 25
Lupus has many faces, and each person diagnosed will tell stories that will be both similar and different. I am one of those stories.
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