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Michigan

Lupus Foundation of America, Inc.
(888) 385-8787

Sue Pilon
Supporter
Just because someone looks good doesn't mean that they are healthy all the time.I have friends and relatives who think that I look great all the time.It gets very d...
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Sheri Smit
Diagnosed at 41
Mum was a spry ‘brit who loved life and was almost as active as her four children, that is, until autoimmune disease brought her to a screeching halt. Mum was diag...
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Carla
Diagnosed at 38
Although Lupus is a deadly mystery it does not mean that this is the end. Im fighting everyday for me and my children. Lupus almost destroyed my life, but Im fighti...
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Tiffany
Diagnosed at 62
I suffered for 13 years with chronic fatigue. I worked for 40 years and it started that long ago. I had been going to my internist for many years, and really love...
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Julie
Diagnosed at 24
Lupus is one of the most unpredictable, complex disease doctors have come upon. Each case is different as well as each flare an individual experiences. I have writt...
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Joanna
Diagnosed at 33
I recently went to the Mayo Clinic and finally received a diagnosis. I also suffer from Hashimoto's Disease, NAFLD, Splenomegaly, Sleep Apnea, & Vestibular Nuerosis...
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Steven
Supporter
As a supporter I am still learning the affects, symptoms and the like. It's hard to see someone you care about go through it. The only other thing I cam say it's ve...
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Cecilia
Diagnosed at 23
lupus is a cruel disease.It affects your life in many different ways,for me it was my joints ,skin and internal organs (kidney and liver)and my emotional well being...
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Megs777
Diagnosed at 26
Lupus may be "the Great imitator" but in fact it's really a blessing. The joy of knowing true friendship and the blessings God has graced me with has taught me to k...
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Jeriesha
Diagnosed at 20
Having Lupus for 28 years is a BLESSING. I was told I would not make it past 25. If I saw 30 it would be something. I almost died at both ages. What I learned i...
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Rita Terry
Diagnosed at 42
I did not discover that I had Lupus until I started losing my hair and breaking out with rashes all over my body. After all ready having been diagnosis with Rhem Ar...
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Tosha M.
Diagnosed at 29
Lupus affects its host as well as their loved ones. It changes your mind, body and spirit. It attacks you physically, mentally, emotionally, psychologically and soc...
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Divaduuh
Diagnosed at 23
Lupus was something that I had heard of and knew someone who had it...but when the tables turned and my Dr told me I had it I discovered a whole world of different ...
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sjn80936
Diagnosed at 24
Lupus is not a disease that attacks only older adults. I was 15 when I began having symptoms. However, because of my age, the symptoms were "brushed off" as somethi...
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Marjorie B
Diagnosed at 48
Lupus is invisible. It's a hidden disease, I don't look sick so people don't understand when I tell them I am sick. I am not lazy, I don't lay down several times a...
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Tami
Diagnosed at 39
Lupus changes your world. I have to keep up appearances even though I'm exhausted and in so much pain just trying to get through the day because I don't look sick....
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Paula
Diagnosed at 37
lupus can be devastating and difficult to diagnose most of the time you don't have all the syptoms at once. However in my case I did I saw every ologist until final...
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Anna
Diagnosed at 18
Lupus is first and foremost, real! It's not an excuse or laziness. It's not something that most people know about or have even heard of, because of that people ofte...
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Becky
Diagnosed at 28
Lupus can attack the blood as harshly as any other organ. A flare in 2005 destroyed almost all of my red blood cells. In 2011, my plateletts were destroyed repeat...
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Erin
Supporter
Although we look good on the outside, we feel horrible inside! Some days it is a struggle to even get out of bed. There are days when I can barely move because my j...
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Stephrice2
Diagnosed at 14
I would like other people to know that even though people with Lupus don't look sick all the time doesn't mean they aren't suffering. Lupus causes a lot of problems...
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Janet
Diagnosed at 33
I want others to know that lupus is a big deal to those who have it and those who love someone who has it. Our lives are all irrevocably changed even if we don't s...
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Daniele
Diagnosed at 32
I was diagnosed when I was 32 but the symptoms started at 29. I have my good days and bad days but I keep on with life. I focus on the positive things.My daughter k...
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Vickie K
Supporter
Lupus took away one of my best friends Robina Padilla after only being diagnosed for about 2 1/2 years at the young age of 20 on April 29 2013. Just a month shy of ...
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JM
Supporter
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jm
Supporter
support
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Amelia
Supporter
Lupus is a frustrating disease that causes a wide range of issues.
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Susan H
Diagnosed at 44
You can't catch Lupus, I may look fine on the outside, but hurting on the inside. There are days when you are so fatigued, along with joint pain and all you want t...
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Deborah
Supporter
I do not have lupus but I do have a very close friend who I love dearly who does have lupus. I see how she struggles daily with her pain and I could never imagine h...
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Vanessa
Supporter
I have realized that people in a whole are ignorant till something comes along and impact your life or someone close to you. I didn't know how serious it was till m...
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Monique
Diagnosed at 17
Living with lupus has definatly been a long battle for me. But the biggest battle I fight daily is the looks and stares from those who have no idea what lupus is le...
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Dawnna
Diagnosed at 29
How life changing this illness is. I want them to know that just because you have lupus you don't have to let yourself be defined or defeated by it. I want them to ...
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Paris
Diagnosed at 16
Lupus is a horrible disease to have as you many or many not know some people say its like cancer I was so scared I was only 16 when I was diagnosed with lupus I wis...
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Nicole sco
Diagnosed at 29
I have been hospitalized, taken vitamin injections daily for a month, its imitated lymphoma, now it attacks my liver leaving lesions on my legs, and attacked my cen...
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JaleesaBel
Diagnosed at 21
Lupus sucks. Living with any invisible disease is really hard especially if you have to do it alone. And if you have lupus i highly recommend checking out rock clim...
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Shanita S.
Diagnosed at 10
After doi.g some research and talking to a few friends, i learned that alot of people are not familiar with lupus. They are also not aware that it is a very serious...
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Shayna
Diagnosed at 25
Lupus sucks, but you have to stay positive as hard as that is.And I wish that it was easier to not give a crap about what people say or think. We wish they could wa...
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Wendie
Diagnosed at 28
On the outside people with Lupus may look like everybody else, but on the inside we deal with daily pain & suffering. We take one day at a time & do what we can, wh...
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Chasity
Supporter
I want everyone to know that lupus is It doesn't matter how we look everyday is a struggle & a blessing
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Avery
Supporter
It is a struggle, but know that many support you.
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Karen
Diagnosed at 29
Lupus is such viscous and mysterious disease. I sometimes prayed that God would take me in my 30's because I couldnt be the mom I dreamed of being to my 2 small boy...
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Belinda
Diagnosed at 39
I would like people to know that lupus completely changes lives. I think people should know that lupus can slowly destroy organ systems in your body long before the...
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Michelle L
Diagnosed at 25
Ever heard the phrase never judge a book by it's cover? That was written for Lupus patients. You see, we may not look sick on the outside but there's always a war r...
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Xio xoxo
Diagnosed at 25
Lupus is a silent-transperent-translucent disease, it appears and damages tissue, joints, and vital organs. Just because you can't see it doesn't mean it's not ther...
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Janelle
Diagnosed at 22
Lupus (SLE) is a terrible disease that can affect any part of your body from skin to muscles to organs. It depends on how active your disease is as to treatment op...
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Cjakes
Diagnosed at 46
It affects men too! Doctors need to be educated. A Lupus diagnosis does not only depend on blood work, but on everything together. I have been ill for many years...
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Divina
Supporter
My daughter is 25 years old and has been battling with Lupus since 2000 when she was diagnosed. When we learned of the disease, we had no idea of the severity that ...
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amber
Diagnosed at 13
Surround yourself around your Dreams !
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Michelle
Diagnosed at 35
Having Lupus has changed my life. I lost my job and found out who my real friends are. It's cruel, painful and there is no cure. It's a part of who I am but I will ...
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Sheri9466
Diagnosed at 43
You may look normal on the outside, but that doesn't mean you are not struggling.
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Deb
Diagnosed at 35
That it is not a death sentence. That just because I look fine, doesn't mean I am. I am not lazy, I am trying my best to make the most of each day. That means ch...
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Kellee
Supporter
If you have a child (especially a girl that just entered puberty) that begin suffering from symptoms, like loss of energy and concentration, stiff joints, sudden on...
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Lisa
Supporter
I didnt know what Lupus was when I was first diagnosed I had no idea that I would be as bad as I am now 18 yrs later I know that things could be so much worse but n...
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Maya7778
Diagnosed at 25
I want people to know what Lupus can do. I want people to understand even if we look good, we don't feel good. This is a hard disease to live with. We have so muc...
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toinatae
Supporter
What kind of illness this is, or whatever there is to know.
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Naomi
Diagnosed at 10
It is a diease that the body is fighting with itslef.
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marcellina
Diagnosed at 30
Lupus is a very terrible disease. It affects everyone differently.
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Joyce
Diagnosed at 56
Be straight(er) with me. No B.S.!
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Heidi Keit
Supporter
I want people to be aware of Lupus. A lot of people do not know how bad this disease is. I pray for a cure.
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N. Pinder
Supporter
Through Faith, Courage and Support you can overcome anything. Although Lupus is not cureable you can still live a wonderful life despite it.
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Lori B.
Diagnosed at 16
It's hard at first, but with hard work and dedication to yourself and your meds, you can live a life as simple as the people you see walking about, Lupus free every...
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Kimberly H
Diagnosed at 23
It is here, it is real, it is painful and hard to deal with and it affects many but it wont control my spirit of life.
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Brenda
Diagnosed at 51
I would like my family to realize that I am exhausted for a reason, it is not nerves. I don't want to be told "you don't have Lupus because I read on it and you are...
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Rachel
Diagnosed at 18
Living with lupus is like being in a relationship with somebody. If "Lupus" is having a bad day then you better prepare yourself. If Lupus is tired, sore, aching or...
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Danita
Diagnosed at 26
I have it...It doesn't have me!
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Jasmine
Supporter
Seeing my mom struggle with lupus was the hardest thing in the world and as a result I lost her when I was only four. Now, 13 years later, I do what I can to suppor...
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Celeste
Diagnosed at 22
Lupus is a life threatening disease which has no friends and sneak silently into your body. It will consume your strength, cause you pain in every part of your body...
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chaos5
Supporter
you can't pinpoint one thing in general. you hurt, you're tired, you have to stay out of the sunlight as much as possible and still wear spf 5000 sunscreen, you fo...
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Dianne
Diagnosed at 38
That although an individual with lupus may not look sick doesn't mean that they are not suffering from lupus.
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Carolyn
Diagnosed at 44
I would like everyone to know that Lupus is not contagious. It is life changing and can be life threatening. It affects everyone differently.
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Wendy
Diagnosed at 25
That it is a very real condition, hard to diagnose, and treatable. When I'm in remission I feel pretty good with minimal discomfort. The most important aspect is fi...
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Maribeth
Diagnosed at 46
I never new I had Lupus until the day my Orthopedic Surgeon who was treating me for severe wrist pain suggested further testing. If it was not for him I would have...
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bddix
Diagnosed at 41
I would want them to know what Lupus is and the different kinds there is. I also would want them to understand what it does to your body. People look at me and thin...
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Danyale
Supporter
Lupus is a chronic life threating disease that can be disabling and ultimately lead to death. We HAVE to make more people aware & FIGHT FOR A CURE.
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kellbell77
Diagnosed at 24
WE NEED TO RAISE AWARENESS!!! I WAS AT A RETAIL STORE A COUPLE WEEKS AGO. THE STORE CLERK WANTED MY EMAIL ADDRESS. I TOLD HER IT WAS FIGHTINGLUPUS@YAHOO.COM. SHE AS...
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StephS
Supporter
LUPUS SUCKS!! LETS FIND A CURE!!! For my dear friend Joyce I hope a cure is found. She deserves to live life in comfort. Joyce has a huge heart and is one of the mo...
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Suzanne Ba
Supporter
Lupus has impacted our entire family. My daughter struggles terribly but the rest of the family was changed as a result of the disease.
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theresa
Diagnosed at 15
Lupus is a life-threatening disease... but it can be controled and you CAN live with lupus... get informed
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Joyce
Diagnosed at 36
Lupus although it effects each of us different, you need to do your research. You ever hear that saying " you are what you eat"? I have decided for now with my Lupu...
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Bonnie
Supporter
With the love & support of family & friends we can work together to find a cure. This disease doesn't have to rule our lives.
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oham
Diagnosed at 18
Lupus can damage any organ in the body! It can keep you in bed with no warrning whatsoever for as long as it wants to. Lupus doesn't care if you need to get to work...
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JusCathy
Diagnosed at 30
Lupus is a coward. A killer that always wears a mask. Doctors think it's your heart, your kidneys or even a bad rash. All the time is the "copy cat killer" dis...
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Shannon
Diagnosed at 25
Lupus does not discriminate, it impacts all of our lives. It comes in like a fury and devastates people's lives everyday! No one is safe, not the young or old, no...
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Dianna
Diagnosed at 41
Sadly, most people know very little about lupus. Thankfully, I believe those days are numbered. Its tough being sick when you don't look (or even act) sick.
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TAS
Supporter
This is a common disease that doesn't have a lot of interest but I would like to help more people become aware and try to find a cure.
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Crystal
Diagnosed at 22
There is no cure. There has not been a drug to treat Lupus in 52 years. Just because you don't look sick doesn't mean that you aren't. I want more awareness brough...
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Jamie
Supporter
It can take a very long time to diagnose, and is very frustrating when trying to why you feel so awful. It makes a big difference if you have a strong support syste...
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Jamie
Diagnosed at 24
Not only does Lupus affect you, but it also affects your whole entire family. When I am sick, my Husband has to take care of our three children by himself. It is ...
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bonniez45
Diagnosed at 48
I really have it.
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Leslie
Diagnosed at 23
Lupus is a complicated illness, which is difficult to diagnose and treat. It has a profound impact on the lives of those living with the disease, and those who car...
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GMR
Supporter
Lupus can present in many different forms.
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Raven Song
Diagnosed at 32
We need a cure! There has not been a new medication for SLE Lupus in over 50 years. Many of the meds used to treat Lupus are cancer medications...yet we are not t...
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Julie
Diagnosed at 34
Lupus is so complex, you can look perfectly healthy on the outside, yet struggle with so much pain on the inside. Committing to a certain event and when that day ar...
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Heather
Diagnosed at 48
Lupus is such a complicated disease that it is hard to explain to others exactly what you are going through. Sometimes you look good but feel like crap. It's frustr...
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lilred
Diagnosed at 28
lupus is a real disease. it effects every organ, mussle, joint in your body,and effects your immune system but you can't catch it.
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Jess
Supporter
I don't have Lupus but want to support in anyway I can!
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cheryl jew
Diagnosed at 42
Lupus is such a serious illness. I almost lost my life several times from the time I was diagnosed. I was 42 years old when I found out I had Lupus. However I th...
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Emily
Supporter
Lupus is a REAL disease. It can be hard at times but with help of doctors and supporters it can be managed.
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dmswantek
Diagnosed at 19
It can affect your mother, sister, cousin, best friend. It can affect the organs, the skin, the vascular system. It can cause depression. It can cause your hair to ...
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TAMMY
Diagnosed at 44
DIFFERENCE CHEMICALS FLIRE YOUR LUPUS UP MAKES YOUR BODY ACK. SOMETHING IN THE PAINT THAT'S AT MY JOB WHEN THEY PAINT MAKES ME SICK.
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Violet
Diagnosed at 39
That is hits each person differently and at different times. You can feel great at one minute and the next minute you are right down. To look at a Lupus patient, ...
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Marsh
Diagnosed at 55
It is a mysterious disease. You can never figure out how you will feel from hour to hour. It is hard to plan anything!! When I'm feeling well, I try to get as mu...
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Lindsey
Diagnosed at 25
That is a very serious disease affecting millions of people and that we need more treatment options!
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Courtney
Diagnosed at 19
Lupus is a debilitating and unseen disease. Attacking your organs, skin, and nervous system.
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PBehmland
Diagnosed at 32
Lupus is silent to no one. It hurts not only the person with the disease, but the family and friends as well. Pain, fatigue, and some level of depression are basic...
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Crystal
Diagnosed at 31
no
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Shawn
Diagnosed at 25
Lupus is very hard on My husband and children. When my children were small and the sun was out I would have to come up with ways to play inside with out turning to ...
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Lexie
Diagnosed at 19
It is hard to live with at first and to accept it. But after a while it gets better.
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Sarah
Diagnosed at 28
<3
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Linda
Supporter
There is hope.
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Brandon
Diagnosed at 31
a disease that occurs when your body's immune system attacks your own tissues and organs,it can cause flare ups,joint pain and cause them to become swollen.lupus c...
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Susan
Diagnosed at 59
Even though Lupies "don't look sick" we are struggling. When we are out and active it is because we had to plan ahead and will likely have to go to bed when we get ...
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Heather
Diagnosed at 30
That it not only effect the person, BUT the whole family. When the mom (me) is sick the whole house is in disarray. I suffer from skin out breaks, joint pain to the...
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Lee Khang
Supporter
Lupus isn't something that is curable that affects a person emotionally and mentally.
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Jenn Cudak
Diagnosed at 30
I have lived with Lupus for several years and that's exactly it...I live with it, not die from it!!!
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Cherity
Diagnosed at 19
That Lupus is not Cureable. Its a illness that no one can see. Lupus affects you emotional an physically, a invisible illness is what i like to say. no one knows wh...
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tambrain
Diagnosed at 30
Lupus can affect your joints, skin, organs, brain and emotions. It can be visiable to the outside world, or invisible leaving you to, at times, suffer alone. I wa...
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Thalia
Diagnosed at 22
Allow yourself to say thank you for little accomplishments, wonderful people, and medical science.
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